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Member Since 13 Sep 2012
Offline Last Active Oct 23 2012 08:09 AM

Posts I've Made

In Topic: Celiac Specialists In Boston

23 October 2012 - 08:09 AM

I had my appointment with Dr. Kelly last week. I was very pleased with her. She said that even if it isn't celiac there are a number of food intolerances that are not well understood yet. She ordered an endoscopy/colonscopy and an u/s as well as a bunch of blood tests, including the TTG IgA, DGP, Total IgA.

In Topic: Celiac Specialists In Boston

26 September 2012 - 10:08 AM

I saw Dr. Sheth last March and should have heeded the warnings. He was, of course, the only one available so quickly. I took it because I was feeling so terrible and wanted answers. I really didn't get any. I waited over an hour to see him, his asst did all the work and when the Dr showed up, it was for 5 min and said I most likely had IBS, but to go gluten free.

After a few weeks, lab results said my vit D was scary low(low teens) and was given prescription vit D. I've called 3 times since April to request lab results be sent to me so I can see where my other values are (still have no clue what my B's and iron were) and still have not received them. Dr. Sheth went on a month long vacation the day after my appt. So when his asst called to tell me about my low vit D, he wasn't sure what the DR wanted to do (since he wasn't even in the country!) as far as a biopsy since my celiac test was neg, but I had some low values and very high CRP and ESR rates. My phone calls were rarely returned and after going gluten free the day after my appt, I didn't want to go back on gluten after 2 months free to have a biopsy (since he was gone so long!). I'm pretty disgusted with my experience with him and his office.

Since being gluten free, I feel a ton better, but still have some issues. Thought about making an appt to see Dr. Kelly or Dr. Cheney...but not sure if it's worth it at this point.

Thanks so much for that feedback. I called yesterday and asked if they had any earlier openings (my appointment is the 18th) and they said only with Dr. Sheth - for this week. I think its pretty telling when a doctor is so available and yet their colleagues are booking months out...

That is what I'm dealing with too - my Vit D was 13, and that was after 2 months of daily supplements. I'm torn between just doing the diet now and waiting, but we are investigating some other possible causes too, so I think I'm going to wait since I don't want to be confused about what the problem is and what fixed it, etc.

In Topic: Got An Appointment For Tomorrow! What Do I Ask?

18 September 2012 - 02:28 PM

Are you close to the office? Some places will have an "on call" list in case someone cancels their appointment.

they did say they would put me on the cancellation list, and I'll keep calling each day to see if an earlier slot opens up.

In Topic: Got An Appointment For Tomorrow! What Do I Ask?

18 September 2012 - 01:10 PM

:( The docs office just called and said they weren't supposed to put anyone in that appointment time and so I'm back to Oct 18th. arg, I was so looking forward to possibly getting things figured out.

In Topic: Allergic To Scented Candles?

17 September 2012 - 09:03 AM

I am very sensitive to perfumes and have that exact reaction - sinus headache. I've eliminated as much perfume from my life as possible and my regular headaches are now much rarer. I can actually tell what i'm sensitive to, as soon as I breath it in my sinuses hurt. :P The laundry detergent aisle in the grocery store and BJs is extremely difficult for me. As such we don't burn any candles or incense. It's so hard to find unscented soaps and things, so I have to just be careful with those - I stick with ones that I seem to have the least problems with.

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