Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 13 Sep 2012
Offline Last Active Oct 23 2012 08:09 AM

Topics I've Started

Got An Appointment For Tomorrow! What Do I Ask?

18 September 2012 - 08:24 AM

I called the BIDMC celiac center back and asked if they had any earlier appointments open up (mine was for October 18th) and they had one for tomorrow morning! So relieved.

Can anyone help with what sorts of things I should ask / request, etc? I'm bringing my husband too if he can make it.

How To Be Sure?

13 September 2012 - 06:15 AM

So I've been battling a myriad of health issues for years. In the last five years I've had worsening depression, anxiety & ADD, which I now take medication for. Fatigue has crept up, it comes and goes but I'm now what I'd call extremely fatigued about a quarter of the time and somewhat fatigued 1/2 of the time. I never had allergies until a few years ago, but I developed allergies to dust mites, cats and dogs a few years ago and recent retesting now has me allergic to a ton of stuff (weeds, etc) that I didn't test positive for two years before.

I often have stomach pain, but I attributed that to the medication I'm on. (Welbutrin, Zoloft, Concerta) I occasionally get random diarrhea, but it isn't constant. My menstrual cramps are progressively worse and periods are wonky. I have started bruising easily. I often feel foggy and my memory has gotten progressively worse.

I was completely flattened fatigue wise in March, and a slew of blood tests found me positive for 'mild anemia'. I couldn't believe it was only mild given how I felt - it was physically painfully tired to even just sit and do nothing. Holding my head up was taxing. My Vitamin D was normal, but 'on the low' end. I started iron supplements and started to feel better, but not 100%. The fatigue came and went, but it clearly was not gone. I switched doctors and repeated the bloodwork, my blood counts were normal, I was no longer anemic, but my Vitamin D was low (20 ng/mL), so I continued the iron and added vitamin D supplements. Still tired after two months, I went back to the doc, repeated the Vitamin D & hemoglobin/hematocrit. Vitamin D was LOWER, now 13 ng/mL, rest was normal.

Yesterday, Doc prescribed megadose of Vitamin D (50,000 units 1x week). While she was off ordering tests I googled Vit D deficiency and celiac came up, I asked her to add that test to the bloodwork she was ordering (repeat CBC and Vit D). I am not sure which test she ordered, I don't know if it was a panel or just a single test, I remember IgA being on the sheet, but of course that is in the name of all the tests. Hopefully I'll hear back tomorrow or Monday as to the results (anyone know how long those test usually take?)

When I look up Celiac symptoms I feel like they fit me like a glove - it would explain sooo much of what is going on. However, I'm also reading how they can have false-negatives and how you can be gluten-sensitive and not true celiac, etc. I'm wondering if I should pursue this further regardless of the test results? If they come back negative would you consider pushing for a biopsy and/or further blood/gene testing based on my symptoms? I think regardless of what the outcome of whatever I do end up doing is, I'm going to try a gluten-free diet to see if it helps, but I need to do all testing before I do that. Who would you see for this? A gastroenterologist? So far this has all been my primary doctor. Thanks for the help

Celiac.com Sponsors: