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Member Since 15 Sep 2012
Offline Last Active Mar 20 2013 10:21 AM

#859022 What Is Wrong With Me

Posted by on 17 March 2013 - 02:31 PM

Ok, well Lupus at 48 is rather uncommon. Even if you did have Lupus, why would you end your life? Would you really want to succumb to this? You have to be stronger than that! My grandfathers brother had Lupus, guess what age he lived to? 92, no I am not kidding you NINETY-TWO. My grandfather who was perfectly healthy lived until 88. Lupus is known to often go into long periods of remission in which some people can even reach nearly a decade of symptom resolution. Would you rather not have it? Of course, everyone on this forum would like to be able to eat gluten without it destroying their intestines but you learn to cope and you become stronger because of it.

You sound like you are in awful shape right now, so it can only get better from here. If you get diagnosed with lupus, well guess what? You get treatment, and it will help push it into remission. At this point, it is only upwards for symptoms so don't give up and don't even think about ending your life because of it! There are a lot of people here that have multiple autoimmune diseases, they are all doing fine. 

Go look through my old threads about my panic about Celiac when I was first faced with it's probable reality, I look back on those posts and laugh now. I also had a childhood friend that was diagnosed with Lupus very early and he is as healthy as anyone else, in fact at this point I would say he is in much better shape than me and most of my friends. The anxiety and depression that come with being newly diagnosed are temporary, you are in a TEMPORARY state of mind right now so it is very important to not act out in any harsh way because of it. 

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#857363 Recently Gluten Free, No Obvious Results

Posted by on 07 March 2013 - 07:43 AM

Nicole, If I had a dime for every doctor that thought they could diagnose the thyroid on TSH alone I would be rich.

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#855883 Newbie With Questions.

Posted by on 25 February 2013 - 08:59 PM

A colonoscopy covers the entire colon but does not go past it, Celiac is in the small intestine. Therefor to expect a colonoscopy to find Celiac makes no sense. I agree with Marilyn that you should shop around for G.I's because if he thought he could find Celiac with a colonoscopy he will also probably be the type to take 1-2 biopsies and call it sufficient. 

It is your money and your health, these procedures are the livelihood of the doctors so they will listen. I straight up told mine to take at least 6 biopsies or tell me now that he won't so I can walk out and go to someone else, luckily mine was very well versed on Celiac and agreed. 

Also if you feel like gluten is causing your problems and you feel better without it then who is any doctor to tell you otherwise? You may not have Celiac but that doesn't mean you aren't gluten intolerant and it could be aggravating your lupus as well as your stomach.

Good luck and keep us updated. We are here for you whenever you need some support/info.

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#854987 What Do You Think Of This Article?

Posted by on 20 February 2013 - 10:28 AM

I also wanted to add to what Karen said, what makes this guy put "Dr." beside his name? There is conveniently no information showing any medical or P.hD degrees. I would be willing to bet a lot of money that he does not have his medical degree and if he does have a Ph.D in something then he is using the doctorate title in a misleading way to make people believe he is a medical doctor. Either way both him and that site are things you need to avoid, testing and medical scares is a huge profitable industry and there are gutless people who will take advantage of that.

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#840928 Genetic Question

Posted by on 04 December 2012 - 12:20 PM

30 percent of the North American population is estimated to carry the gene, only 1 percent will actually develop the disease, therefore even if they have the genes it is not diagnosis. There are studies that have shown that anywhere between 20-45 percent of people with a first degree relative that has celiac will also have the disease. I would say the biggest cases would be your sister as she already has another AI (one commonly attributed to celiac, we have many members that developed it from being undiagnosed) and your son with autism. The good news with your sister is that if she does have celiac we have had many members who had their symptoms improve or even diminish off going gluten free.

Either than that it is all just a guess, you know the symptoms and how they can be non intestinal so keep an eye on your kids, if symptoms start developing retesting would be in order.
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#835459 Need Advice About Conflicting Test Results Please...

Posted by on 09 November 2012 - 10:42 AM

Here are some of the many causes of villi damage:

Coeliac Disease
Cows Milk Protein Intolerance
Soy Protein Intolerance
refractory Sprue
collagenous Sprue
Immunodefiency Synodromes
Mediterranean lymphoma
intestinal ulceration
Intractable Diarrhoea of Infancy
Protein Calorie Malnutrition
Tropical Sprue
Parasitic Disease:
Intestinal Capillariasis
Hookworm Disease
Eosinophilic Gastroenteritis
Contaminated bowel Syndrome
Drug and Radiation Damage

As you can see, diagnosing an abdomen issue is no walk in the park. Have you had your thyroid checked?
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