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ScottR13

Member Since 18 Sep 2012
Offline Last Active Nov 17 2012 03:08 AM
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Posts I've Made

In Topic: Angry, Frustrated, And Depressed About My Food Allergies

16 November 2012 - 01:11 PM

Hello everyone,
I'm 23 years old and I was diagnosed with celiac, adrenal fatigue, anemia, and an intestinal parasite back in September. I also found out that I have allergies to soy/legumes, dairy, eggs, corn and am very sensitive to sugar. I've been attempting to eat strict Paleo (except for the egg part as I'm allergic) as often as I can since those foods really do make me feel a little bit better or at least I don't react to them. My problem is that I can't stick with my allergen-free diet. I've seen a lot of posts on similar topics but I was hoping to get some input on my personal situation, or at least some support. Until last night I was 48 days gluten free, 48 days egg free, 13 days dairy free, 20 days soy free, 2 days corn free and 2 days sugar free. But last night I just cracked! I ate all the foods I'm not allowed to eat. I feel so deprived. I've tried substitutions but I end up reacting to those as well. When it really gets down to it I know I'm addicted to food. I've used food as an emotional crutch ever since my parents got divorced when I was 7 years old. Every since finding out about my food allergies in September, I've been crying every single day. My boyfriend doesn't know how to help me and I just cry whenever we are together. I honestly don't feel like I can live the rest of my life with these food allergies. Every day is a huge struggle and most days life doesn't seem worth living. I don't know what to do to anymore. There's practically nothing I can eat and as we all know a lot of social activities revolve around food, especially at this time of year with all the holiday parties. I'm so frustrated and tired (in addition to the chronic fatigue) with having to cook all of my meals and sit back and watch other people eat the foods I can no longer safely eat at dinner parties and such. My boyfriend is a blessing. He won't eat anything that I'm allergic to in front of me because he knows how much it hurts (and he also doesn't want to have to brush his teeth every five minutes just so he can kiss me :) ). But it's still not enough. I'm in so much emotional turmoil. How can I get the motivation to want to take care of myself no matter what situation I'm in? I know things are eventually supposed to get better and I know I was not free from my allergens for any significant amount of time, but I hadn't seen any improvement in my aches and pains, fatigue, sleep, or emotional issues, which really makes it hard to stick with the diet. I feel very left out and isolated. I just want to be normal again. Thank you in advance for reading and responding. I appreciate any and all help I can get.


That, to me, suggests you have not found all your allergies ( and assuming the 1's you have now are accurate. Testing can be a liitle suspect). Do you still consume Milk?

In Topic: How Do You Do A Milk/dairy Test?

15 November 2012 - 02:20 AM

The easy way

http://www.questdiag...mitValue=Search

or the hard way

http://www.mayoclini...s-and-diagnosis

Ps I was negative for Cow Milk Allergy (positive for Goat Milk), however, I've been reading up on Cross Reaction (meaning immune system can attack similiar "looking" Proteins). I have since eliminated Milk & I'm seeing improvment in my systemic yeast infection. It's only been 3 days.

In Topic: Gluten: Allergy/sensitive/intolerant/celiac

14 November 2012 - 01:44 PM

Though he may call himself "1 of the leading Gluten Dr's/Researchers", I don't think that any of the actual leading gluten Dr's would agree with that. I don't think that he has published any gluten research. He is not a medical doctor. I would call the video his opinion rather than the opinion of the medical community.


This site does/would... http://www.celiac.co....-Peter-Osborne

This was posted to not only help people with C.D. to try and understand what they have but to also help with family members (brother, sisters, children, parents). Just because you don't tests "positive" for C.D., it does not rule out a Gluten Allergy. Gluten Allergy is far more common than C.D. and just as devastating.

In Topic: Am I Just Grabbing At Strings?

06 November 2012 - 02:53 PM

My husband told me last night that he thinks I'm grabbing on this celiacs because I want an answer but he doesn't think I have it and am grasping at straws. No he is not a jerk really (most of the time anyway:). He even was the one who brought up the idea of celiacs again after seeing show about it and thinking I do have all the symptoms. My brother has it, and I've been tested twice, both times my blood work was negative, I need to find it and can post, because I don't know if my overall numbers were low but I think the positive is greater than 20 and mine was 2.

I also had a endo/colon and my dr took 1 sample and it came back fine. So I had two tests that were negative.

I did the enterolabs and those came back positive but our dr says they are not something he believies. I do have one of the celiacs genes though.

So I guess I need a reality check..if my blood work was so negative, my intestines look good should I get off thinking I have celiacs? What else could cause all the symptoms I have (anemia (severe), gastrointestinal problems, hair loss, joint pain, numb/tingly arms, etc...)? I am having a pill cam endoscopy later this week because my doctor thinks my anemia is caused by a bleed that he couldn't find during the endo/colon, maybe that will shed more light on the matter. I know the other things they are thinking for the anemia is a bone marrow issue :/


Reading that a relative has Celiac, there's a great chance you have a Gluten Allergy. With a Gluten Allergy, you can have all the same symptoms as Celiacs except for the damaged Villa (which is, in part, how they diagnose Celiacs).

I have a Gluten Allergy & here's a link to the tests I had done ... http://www.questdiag...mitValue=Search

Here's another link from another Lab with 2 very good videos @ the bottom of the page... http://www.greatplai...allergy_igg.asp

In Topic: Eggs?

06 November 2012 - 02:27 AM

Welcome Scott!

You are correct about the lack of proper testing with regard to IgG's. My allergist only ordered them all AFTER I had already determined many of my food intolerances by strict elimination diet/trial and I was under the care of a top celiac doc whom did order genetic testing on me for DQ1, 2, 3 and 8.

That being said - Celiac Disease, Non-Celiac Gluten Intolerance (NCGI) and Gluten Allergy are often very confusing to those new to the idea that gluten may be causing them problems.

Your knowledge with regard to gluten allergy is invaluable here, but please remember your audience and make your statements clear with regard to Celiac Disease and Gluten Allergy.

Thanks :)


Thank you & I will try my best.