I spent the first two months after my diagnosis using black pepper and baking soda that "could contain traces of wheat". I felt like a complete idiot when I discovered it, after thinking I was being so careful reading lables... and wondering why I was still having setbacks. I already had those in my cabinet, and never thought to look at them.
I just dreamed last night that I was frosting several huge chocolate cakes, then I accidentaly licked my fingers, and then panicked, lol. I have, in reality, had a few moments where I came very close to just popping something in my mouth without thinking about it. The other day I almost bit into a piece of regular pasta to see if it was done. Duh!
It is entirely possible your husband has it, but many many other autoimmune diseases can cause blood clotting problems and blood circulation problems. I know Lupus patients can get blood clots and I believe that Raynauds affects circulation too. Diabetes can cause clots... I would look through some of the other AI disorders and see if any fit better.
In the case of your father, I would say that is probably more likely because AI disorders tend to run in families. Would he be open to testing for celiac and other AI disorders?
Hmm, that's true, his uncle just had a clot recently, and he was getting tested for lupus, I hadn't thought of that. Thanks for the advice, I will check out different AI disorders.
My father had the blood celiac test done, and it came back negative, apparently. He also has bone spurs and degeneration in his spine. He has a huge amount of crazy symptoms and decades of serious health problems. I've discussed it quite a bit with my parents, and I do think he suspects he could have it, but I can;t see him being very willing to make the lifestyle and diet changes to get better. I will bring up the idea of looking into other AI diseases with him as well. Thanks again!
I am amazed at how I discover new things every time I come to this forum! Someone mentioned dry heels and elbows, that are now getting softer. I never attributed that to celiac, but yes, mine are softer now too. I always had a lot of trouble with my heels, and now they are fine. Amazing what gluten can do to your body.
I went gluten-free after my diagnosis in late June, so I'm still fairly new, but I have had some changes.
what changed for you after you went gluten free?
- For a long, long time, I have had this constant pain in my left heel. I though I had possibly broken it, but after going gluten-free, it went away. It comes back whenever I have accidently been glutened, and sticks around for awhile. I had other joint pain all over, and an awful bout with sciatica. Those are mostly gone. I had horribly "D", and that went away to some extent, and is improving month by month, as I get better at discovering the hidden gluten I was still getting. (For example, my black pepper and other spices could have had traces) I have only had one or two migranes total since going gluten-free, after having them at least once or twice a month, sometimes more. My brain is much less foggy and I'm generally in a better mood.
Did you have more energy?
- In general, yes. For the first few months, I was still exhausted almost constantly, and would only occasionally have a "good day". For the past three weeks, I have finally seen my energy coming back, bit by bit. I still have bad days, but they are less now.
lose weight? gain weight?
Last time I checked, I had lost about 15 - 20lbs.
healthier skin and hair?
My hair has been falling out, a lot, I'm hoping that will improve soon. My skin has a healthier look to it now. I always looked sickly and pale when I was at my worst. When I have gotten glutened, I look terrible.
more regular bowel movements?
Yes, after going gluten-free, I had "normal" bowel movements for the first time in months. Again, good days and bad days.
get rid of depression?
Yes, much improved.
any bloating? How long did it take to see changes?
Overall, getting better. Good days/bad days.
What symptoms have not gone away?
Still very tired a lot of days, it's still hard for me to exert myself too much, or my body will tremble. I still get my symptoms now and then,... but it's all getting more tolerable. I'm trying to be patient and allow my body to heal.
Did being an un-diagnosed celiac for a long period of time cause any one to have any permanent, un-healable damage or other diseases or syndromes?
- I'm not far enough out to determine that yet. I do have PCOS, (Polycycstic Ovarian Syndrome) which a lot of other celiac women seem to have as well, and insulin sensitivity. I developed severe carpal tunnel in both hands, at a pretty early age. I have had surgery on one, the other needs it as well. My body has been put through a lot, and my weight has gone up and down numerous times.