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Member Since 23 Sep 2012
Offline Last Active Nov 10 2012 11:42 AM

Topics I've Started

Am I Seeing Celiac Where It Doesn't Exist?

09 November 2012 - 07:43 AM

I feel like the kid from the Sixth Sense, "I see celiac people".

But seriously... I was just diagnosed through biopsy in June, and have been gluten-free ever since. My symptoms are improving, and I'm doing okay.
However, I now have concerns that my husband could also be celiac. He's having quite a few health problems. I really just wanted to see if other people had these particular illnesses, and were diagnosed w/ celiac.

So, he had multiple, large blood clots in both his lungs (pulmonary embolisms) late last year. The doctors said many looked "old", and that new ones had been building on top. We were very lucky to have discovered it in time. We never found an answer, why he got these, he had not traveled, he had not had a physical trauma, nor genetic issues.

We've been to the ER with him about 7 times in the past year, with odd symptoms, arm and leg numbness, chest pain, shortness of breath. CAT scans show that his clots have not returned, thank goodness. After many, many tests, they discovered he has some stenosis, degeneration and bone spurs in his spine, in at least two seperate pairs of vertabrae. It helps explain many of his symptoms... but I have to wonder why all the illnesses are suddenly popping up. He just turned 40 years old.

He also is often tired, naps a lot, joint pain... but he works a lot and is a tall big man...

I have seen people discussing bone degeneration and blood clots, are these somewhat common celiac issues... or am I just putting together puzzle pieces that don't belong?

He's been very supportive to me as I have been learning, and changing my life due to celiac. When I have bought up the possibility that he could have it as well, he shrugs it off. I am also about 99% sure my father is celiac, with good reason, he has fibromyalgia and is a textbook celiac case. I think my husband just believes I am seeing it everywhere now.

Thanks for any insight.

Hello, Introducing Myself

03 October 2012 - 09:29 AM

Hi, just thought I would formally introduce myself. I've been posting for a short while.

I've had mysterious illnesses much of my life. I've had lifelong struggles with migranes, stomach problems, insomnia, fatigue, depression, panic attacks and anxiety. I would occasionally pass out. My weight has gone up and down numerous times, and my menstrual cycle was irregular to the point of going years with none. I would sometimes have strange outbreaks, like hives, swollen eyes and lips, terrible mouth sores, or odd skin eruptions all over my hands. Many of these things I just accepted as quirks. I wasn't encouraged to go to the doctor, and I learned to just "be tough".

Soon after I married to my husband of 13 years, we tried to conceive, with no luck. About 2 years in, I was diagnosed with PCOS (Polycystic Ovarian Syndrome). I latched onto that as an answer to many of my issues. With a lot of time (4 years) and effort, diet changes, weight loss and some meds, I was able to conceive twins, and give birth succesfully. I then miscarried twice, and finally had my third child, four years after my twins.

After a few very stressful years, and the birth of my third child, I began to struggle more. I could not lose weight no matter what I did. I would work out for an hour a day with no results. Then, my husband got very, very ill, late last year. He was in the hospital for a week, then out briefly and back in. Not long afterwards, my health started to decline, very rapidly. I believe the stress kicked my celiac into high gear.

I became fatigued to the point of having to drag myself out of bed each morning, and spending much of the day on the couch. My weight ballooned, even though I didn't eat much, and had no appetite. I always looked pale and swollen. I didn't have a regular BM for months on end, they were all loose, and quite often bloody. I had shooting and dull pains in my abdomen. My sciatica occasionally acted up, my joints ached and I had constant pain in the heels of my feet. I could not shake my low grade depression, despite being on meds. Anytime I tried to exercise, my hands and knees would tremble. I woke up one morning shaking all over, unable to get out of bed at first.

I went to my PCP about the pains in my abdomen, and other concerns and he thought it was gallbladder. After several tests with no results, I was sent to a GI, had a endoscopy and colonoscopy, and was finally diagnosed with celiac and gastritis, atthe age of 35.

I've been gluten free since late June, and have seen improvement in some ways, and still struggling with others. Still very fatigued, taking supplements, and getting additional blood tests within the next day or two. I've lost about 16 lbs thus far, which is nice, but I'm most concerned with healing. I'm really grateful to have found this forum, and discover so many other people "like me". Congrats if you made it through my ramble. :)

Newbie W/ Supplement Question

23 September 2012 - 08:06 PM

Hi, I'm new here, although I've lurked a few times. I was just diagnosed in June of this year, and am working to completely change my life!
Many of my symptoms have lessened or stopped,thankfully, and overall I'm doing better, with some setbacks. I still have bad days, and have accidently glutened myself a handful of times, just from ignorance, but I'm learning.
I've been trying to eat as healthy as possible and have been taking some supplements. I'd like to ask for some advice about supplements. What do you take? What do you recommend?
One of the things really upsetting me lately is hair loss. Anytime I wash, comb or run my fingers through my hair, it falls out. It's not just breakage, I can see the roots on the end. I'm hoping this goes away with time and healing?
Thanks for any advice, and I'm so glad to have found a group of fellow celiacs!

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