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NoName33

Member Since 25 Sep 2012
Offline Last Active Nov 23 2012 10:29 AM
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Posts I've Made

In Topic: North Syracuse Area

08 October 2012 - 05:49 PM

Hi

I'm probably too late on this but in case anyone else is traveling to the North Syracuse area I thought I would respond. For groceries, Wegmans on Route 11 has a good gluten free section. For restaurants I recommend Coppertop, also on Route 11. When we have gone there our waitress told us the head chef will handle your order and will prepare it in a separate area if you need gluten free. They also have gluten free pasta.

Here is a longer list of gluten free friendly restaurants in the Syracuse area:

http://www.cnyceliac...estaurants.html

In Topic: Will The Doctor Insist On A Biopsy?

26 September 2012 - 06:18 AM

The choice to biopsy or not is really up to you. If your ped will give her the diagnosis she will need for schools to take her need to be gluten free seriously then if you are reluctant to endo her you could choose to forgo it. Talk to your ped about your concerns. If you are going to choose to do the endo do be sure to keep her on gluten until that test is done and make sure that the GI is celiac savvy and will take enough biopsies. Damage can be patchy especially in children.


I am very lucky in regards to her school - it is a small private school and they are familiar with the disease already based on my conversation with her teacher (there are staff members with it). They do not have a lunch program, you have to supply a lunch every day. And the tables are cleaned every day right before they eat lunch. They do not allow treats to celebrate birthdays either.

In Topic: Will The Doctor Insist On A Biopsy?

26 September 2012 - 06:06 AM

Not sure I understand the 'pressure me' part. It's a pretty easy procedure that 6 yr olds can handle just fine.

Are you thinking of a downside that I'm missing?


Sorry, I should have explained better. *I* think it is unnecessary based on the fact that her Dad has it and her blood test results. Also, she is a very high anxiety kid and will probably not handle it well.