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KnightRobby

Member Since 30 Sep 2012
Offline Last Active Oct 04 2014 11:01 PM
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Posts I've Made

In Topic: Celiacs Need Their Own Ice Bucket Challenge

03 September 2014 - 05:28 PM

Anyone have any thoughts on this?  Because you would want everyday normal items to be used.  The big thing that helped the ALS ice bucket challenge was the fact it started with celebrities for exposure.  


In Topic: Flying And Travelling With Celiac And Hotels, Etc

02 September 2014 - 05:53 PM

Okay great.  Thank you all for the info.  I'll have to look up those GoPicnic lunches.  I've never heard of them until now.  Too bad options are limited when taking stuff on the plane.  That's the real pain in the butt to be honest, but it is what it is.

 

And yeah, I have a friend in Sweden and did some homework on Celiac in that area.  I guess they had a major epidemic in the 70's.  They managed to reduce the amount of children getting Celiac by changing the formula they were fed when babies and reducing Gluten foods.  Anyway, definitely worth reading up on imo.  Seems like scientists can learn a lot from Sweden and their outbreak.


In Topic: At A Loss; Constant Stomach Pain Continues

18 May 2014 - 04:24 PM

It might actually be the milk that could be making everything worse.  I will try without it for a few weeks and see how I do.  I am thinking that is just it.  But yeah, I also experience problems with Apples and pears as well.  I am suddenly unable to eat peanut butter or anything from tree nuts, which is a bummer.  I'd like to be able to buy some prepackaged gluten free foods once and awhile and eat those but it just isn't happening.  I get such a bad reaction from anything at Wal-Mart, etc.

 

And I don't believe it is the one food at a time thing for me.  I know what you are referring to, but I looked into that.  I'm sure a good Celiac doc would've recommended to lose the cheese and milk.  But...but...I love my cheese. lol  Alright, I give in.  I really, really want this stomach to heal.  The pain is constant.  

 

Appreciate the advice.


In Topic: At A Loss; Constant Stomach Pain Continues

18 May 2014 - 02:06 PM

I have an official Celiac Diagnosis through blood work. The biopsies came out to be negative though.  I also have had an endoscopy and I got the hayfever diagnosis from an Allergist.

 

I am also anemic, as diagnosed by my Gastro.  I really don't know if the anemia could be causing a lot of these problems or not...?  Perhaps I should see a hematologist eventually?  

 

The biggest problem I have at the moment is I am surrounded by worthless doctors.  I told my Celiac doctor I was anemic.  He did not believe me, so I ended up in the ER and they diagnosed me.  Every single doctor I have been to has been this way.  


In Topic: Eating Out...recommendations?

22 February 2014 - 10:57 AM

Alright, stay at home it is.  Thanks.