monahere

Thanks, is it okay to just wash off any gluten containing dust ? I mean how safe is that celiac wise? There is a huge choice of grains that are naturally gluten free, but finding something that's not contaminated is very tricky.

My son is 8 months old, we EBF for 7 months, I was on regular diet for first 6 weeks and then on a total elimination diet ( top 8 allergens and some other foods free) due to baby's feeding issues, but still he did not grow at all from 4 to 6 months, we put him on formula at 7 months and he grew 1 inch in 10 days. I don't know if the gluten that passes in breast milk first 6 weeks did the damage or probably cross contination, which I was not too careful about since I had noooo idea about celiac, did the damage. DS is still not diagnosed with celiac but he is DQ2 and DQ8 positive, so I am treating him as celiac and waiting for an appt to see a celiac specialist.

TED is total elimination diet, at one point I was only on rice, squash, zucchini, olive oil, black pepper but it lasted only 4 days as I was losing my milk supply.....gosh this is hard and just wanted to get some perspective how moms of babies this young cope with this stuff.....

Hi Mitzi
Thank you for your reply. I was on TED while breast feeding or so I thought, we are Asian Indians and I was consuming spices and flours ( sorghum, millet) from Indian store which there is a high chance they are gluten contaminated. I am pumping to keep my supply and want to breast feed after being completely gluten free which will be 4-6 more weeks since I did consume all allergens on September 26 th.