After six years of living with a unknown skin condition I was finally diagnoised with Celiac Disease and Dermatitis Herpetiformis. For years everytime I would have a bad skin break out and would go to the doctor, she would shrug her shoulders and send me home with some cream. After a year of going in and out of the doctors office with these spots, she suggested I see a Physiatrist.
There is a reason for this. You see at the same time the hunt for the reason of the rash was going on, I was also dealing with chronic pain from a car accident. She thought the rash anxiety related. I was desperate,so I made the appointment. I thought maybe that I might finally find out the reason for all of these sores and scabs I have been cursed with. Well, I was given the diagnosis of Self-Mutilation. I kept trying to explain the cycle in which this skin condition had, he didn't believe me. Now Self-Mutilation is on my medical record, I was the cause of these sores, I made them. I was put into the same catagory as a person that was into self cutting themselves.
Yes I scratch at them, but no I do not sit there and dig holes in my skin. Why would I purposely scar my face and body? I used to have perfect skin, I never even got pimples as a teen. I have always have had a rather light complextion, that scars easily. Now I can't go outside with a T-shirt on without people looking at my arms. It is like they do not want me to touch them...like I have poison ivy.
I then went to a dermatologist thinking ok, they will know what this is. I told him about my previous diagnosis of self-mutilation, in a joking matter. Like how silly was that. I am so stupid...they didn't even run any tests. They didn't say it out right but I think they were in agreement with the shrink and I was dismissed.
It gets worse, here comes the disturbing doctor visit. I found out my chronic pain was due to degenerative disc disease, which I was diagnosed with while this whole search for my skin problem was going on. I was put on morphine for the pain.
Now keep in mind Morphine use is now in my medical record. I can't remember what street drug causes skin lesions, crack or meth? or something like that. Now when I would go to the emergency room or to the Dr. for anything they would ask me what the "spots" (that is what I call them), were from. A few people even asked me to see my teeth. Seriously? Because I found out tooth decay is common with meth users.
This is the worst experience I have had so far. I go to the emergency room for a pain in my hip and I am treated like a drug addict. They put me into a closed door room and asked me, "what else I was there for?" I looked at ER Dr. and said I can not put pressure on my leg. He again asked me what else was I there for. I also repeated myself again. I was given an X-Ray and the Doctor came in and told me I had a bone spur on my hip. He then left the room no other conversation was had with him.
I guess a long story short, after five plus years of having undiagnosed Dermatitis Herpetiformis, I have finally been formally diagnosed by a different dermatologist. I am happy yet so mad at the same time. Years! years! Now I am scared for life. I have gone through hell and why. I have always had all the symptoms of Celiac Disease, yet I just found out about it. I just started my new gluten free diet. I am only two weeks in and my skin is clearing up already.
The point of my story is why was I treated this way? Is it because I have tattoos (which are totally messed up now) and peircings. Or is it because Gluten allergies are so often misdiagnosed?
Has anyone else had this problem? Are doctors not educated enough on this disorder? I just don't want to see anyone to have to go through the problems and discrimination that I had to go through.
PigmiMember Since 02 Oct 2012
Offline Last Active Oct 09 2012 11:12 PM
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Green Bay, WI
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