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karoyse

Member Since 05 Oct 2012
Offline Last Active Mar 26 2014 09:32 AM
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#831414 Invisible Disease: You Look Healthy

Posted by karoyse on 22 October 2012 - 05:36 AM

I know exactly what you mean. I just got DX but for the last two years i have felt like the walking dead and most people just don't understand it isn't by choice that I feel this way.
I feel bad when I am in so much pain I can't get down on the floor and play with my grandkids. My husband was really getting mad at me until I got DX with Celiac's but now I think he starting to try and understand. He has just retired and is full of energy and life. He wants to go out danceing like we used to but I just am not up to it. I was always very active until this.
I am a Custodian at an elementary school with 500 kids. Its a hard job even when you feel good. It's all I can do somedays to just get my job done. I keep wondering how much longer I will be able to work.I know people are wondering why I am not the same person I used to be.
I am praying going gluten free will help. Since people can't see what is happening to us they just don't understand. Until I found out about Celiac's I really wondered what was happening to me and I had heard about Celiac's before this. Why isn't there more awareness?? I had heard on people not eating gluten but really didn't understand why. Now I do !!
Hope for better health
Kim
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#831085 Barretts Esophagus And Acid Reflux Meds Causing Severe Mucle Pain

Posted by karoyse on 20 October 2012 - 05:01 AM


Hi I just got DX with Celic's, Barrett's esophagus, Hiatal hernia and Gert on October 1. This was a surprise because I went to the Dr because I had a cough and a little stomach pain. ( long story made short) The Dx has helped me finally figure out why I have been feeling so bad. I thought most of it was just going though Menopause. Plus not having a thyroid has make my health problems crazy over the years.This DX has answered a lot of the puzzle pieces of my family's health problems
My Mother died exactly 3 years to the date of my Dx. She had colon cancer as did my Grandmother and Uncle.
This is all very over wheming on top of the fact the medicines the Doctor gave me cause severe muscle weakness and pain. When I talked to the Doctor and Pharmacist they both look at me like I'm crazy and say they should not do that but I have stopped them and the muscle pain goes away. I have tried several over the counter and prescriptions for acid reflux. They all cause muscle aches some faster then others. I know Celiac's can cause some muscle pain too which I think is part of the problem because for year's my legs will ache if I over do it or take certian meds.
Does anyone have this problem? Should I just stop taking the med's? They really make me feel awful and I have a very physical job and
somedays I wonder how I can keep going.
I have read a lot of the post in these forums and they have been a great help with a lot of my questions for Celiac's. I have had a lot of health problems over the years and wonder what in the world was wrong with me. I think I have had Celiac's all my life but in the last year it has really kicked in. I feel after reading these forums a least I'm not alone. ( I wouldn't wish this one anyone but I know now all my aches and pains weren't in my head like some people make you feel) Thanks Kim
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