I know he will be helpful in this situation. He knows how important it is but he also is calling me frantically with "what do i feed her" "what do i pack her for lunch" "i dont even know what to buy at the gorcery store" and i understand it is over whelming i just keep trying to give him tips on how to understand....but yes the best bet will probably just to educate my daughter. Thank you for your suggestions =)
This may be an odd question....but does forgetfulness/memory loss have anything to do with Celiac? My memory has gotten so horrible that even my 7 year old daughter has noticed it and sometimes comments/teases about how mom doesn't remember anything. Just curious? Or maybe thats a completely different issues lol
Yes, since celiac is genetically based, it sounds like it might have struck all three generations. The neurological symptoms of gluten can also mimic epilepsy, although it generally does not respond well to epileptic medications, as in the case of my brother.
I would pretty much bet your tests are positive, and if they are not I would ask for a biopsy.
Wow I did not know that about epilepsy mimicing celiac. Although my mom does seem to be doing good with her medication...but on the other hand my brother who also has been diagnosed with epilepy is having a problem finding the right kind of medication. None seem to be working for him. Thank you for your advice. I will ask for the biopsy if the blood work comes back negative.