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CaveMum

Member Since 11 Oct 2012
Offline Last Active Dec 04 2013 09:12 PM
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Posts I've Made

In Topic: 4 Yr Coeliac, gluten-free Nearly 12 Months, Still Bloated & Tummy Aches

19 November 2013 - 01:50 PM

A few ideas:

 

Soy intolerance

Corn intolerance

Cross contamination somewhere

 

edited to add more:

 

He could have issues with rice, quinoa or even gluten free oats.

 

The best bet at the moment would be to record everything he eats in a food journal to see if there is a connection.

Thanks for your reply, soy and corn were the next suspects on my list.  It's good to know I am on the right track.  During the week that the tummy aches flared up, my husband did the shopping and got soy milk instead of rice milk.  He is back on rice milk, but the tummy aches are still present.

 

Cross contamination is not likely at home, but I do wonder about kindergarten.  He has become a finger nail biter, and I wonder if he might be picking up gluten somehow from things that other kids touch after they have eaten.  We have holidays coming soon,with six weeks off pre-school and if the symptoms disappear,  that might answer the question.

 

He doesn't have any oats, as they are not recommended for coeliacs where we live.  I have wondered about other grains - but hope it's not that.  It will really put the squeeze on if he can't have rice.  I will get onto systematically keeping a food log.


In Topic: If Your Body Is Making Anti-Gliadin Antibodies, Doesn't That Mean You...

22 December 2012 - 03:04 AM

According to Dr Rodney Ford :


".....look for evidence of gluten harm: this is to make the diagnosis of gluten-sensitivity (reactions to gluten without the gut damage).
  • Anti gliadin antibody IgG (Also called IgG-gliadin antibody)
  • Anti gliadin antibody IgA (Also called IgA-gliadin antibody)
A positive test shows that you have an immune reaction to gluten. This might not be causing symptoms yet. Most gluten-sensitive people have a high IgG-gliadin test."

In Topic: Onset Of Celiac In Baby

21 December 2012 - 05:26 PM

I did wonder why the blood tests were delayed, but am glad to hear that you are getting them done sooner. What will your next move be after the blood test results are back? If you need to go for a biopsy, you will need to keep her on gluten until then, unfortunately :(

In Topic: Has Anyone Eliminated Food With Dyes(Yellow#5, 6 Etc).....

21 December 2012 - 12:53 PM

Hi ampmomof3, bear with me, this turned out to be a much longer post than intended!

"What made you test for celiac? Did you test after doing the elimination diet? "

He was tested for coeliac antibodies as he started the elimination diet. Our dietitian was very clued up, noticed his big bloated tummy (which our GP just the week before said was "lack of musculature") and wanted to have coeliac excluded as a reason for his irritable behaviour,lack of sleep & digestive problems. In retrospect, we realised his bowel motions hadn't been normal for some time before this and his height gain had tailed off, all of which pointed to celiac disease.


"He had the rash for five years(dx as eczema, dermatitis, etc) and the only treatment that helped was eliminating gluten! The rash was gone in two weeks!! "

That seems like pretty compelling evidence of gluten intolerance. It might be worthwhile reading up on Alessio Fasano or Rodney Ford's work in this area.

"I had him tested for celiac (tTG IGA) and he was just under the weak positive(so it was negative)...but
we had been gluten free for two weeks"

I wonder if being off gluten may have invalidated the antibody test. Did you mention to your doctor that your son had been off gluten for two weeks prior to the test? I guess that you would have two options, either re-introduce gluten for some time and then test bloods again, or continue to eliminate gluten and observe symptom changes. Either way, it would be good to do proceed with monitoring from your doctor so that you have documentation (ie, height/weight changes, clinical observation of rash etc if you decide to stay off gluten). At this point it is totally up to you whether re-introduce gluten or not. This was something I didn't really appreciate fully when we were getting biopsies etc done.

"I'm thinking we were actually eating alot less gluten because of feingold."
Yes, I agree. I think that because the elimination diet cuts out a lot of processed food, the gluten content is much lower than a standard diet.

Another resource you might find worth looking into if you haven't already is www.fedup.com.au which has factsheets on food additives and the symptoms that they may cause and anecdotes from people who have tried the RPAH, FAILSAFE or Feingold. The elimination diet is a lot of work, and I hope that you see some positive results with behaviour to make it all worthwhile. Good luck to you with sorting this all out! :)

In Topic: Onset Of Celiac In Baby

20 December 2012 - 08:22 PM

The blood tests are not nice, but with a younger child, I found them easier to manage. My 9 month old was blood tested recently, by heel prick. He was pretty calm about it. My 3 year old has had two sets of blood tests for celiac antibodies, the first was a finger prick which took longer but was less traumatic, the second time they did venepuncture, and that was much faster but it was more upsetting for him. It was the same panel of tests each time.

Rather than taking pot-luck, I would call the blood collection centre beforehand to check that they have someone there who is good with kids.