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Skysmom03

Member Since 17 Oct 2012
Offline Last Active Jan 21 2013 09:01 AM
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#847152 Coming To Terms

Posted by Skysmom03 on 06 January 2013 - 02:03 PM

You can always try to call around about your situation and find out who would be willing to look into your situation and do the testing. Since you have no insurance, do you not qualify for any aid from the state? The only other option would be for you to go gluten free until you get a job again then reglutenize yourself and get tested.
You have to take care of yourself mentally though do you can get your life back on track. Once you do that, everything will work itself out! If you can accept that this may be what you have, you can work from there and things will improve, but you have to stick with it. Without an official diagnosis, I personally would have a harder time sticking to it since no one has actually told me I have it. You have to make the decision from the beginning that you aren't going to do that until you can get tested. It should be easier if you see improvements with the diet....... Oh and I would start with gluten first.... If you start getting rid of soy and diary and gluten all st once. You won't know what is actually doing the trick!
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#847106 Coming To Terms

Posted by Skysmom03 on 06 January 2013 - 07:57 AM

Find a good doctor ( not necessarily someone you would just go too on the dour if the moment for the flu)!!! Tell him/her your concerns and symptoms and ask for a full celiac panel. Go from there. You are ahead of the game with the realization that food may be making you sick! I believe once you can accept that the rest will be a piece of cake. It will be difficult at first ( you are learning how to read labels doing research) but after a month or so it will be so much easier. Start out first with food you know have no gluten.... Salads, meats, rice, orators, fruits .... Ease yourself into products that are labeled'gluten free'.
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#847065 Biopsy Result At Last. Help Understanding It!

Posted by Skysmom03 on 05 January 2013 - 08:40 PM

He is pretty good! It has been a year and a half since he was diagnosed. He is finally able to gain weight. He also has type 1 diabetes so we always thought that was part of the reason why he always hovered around 145lbs. Then in April of 11 he got really sick for a week. Throwing up and D. We thought it was a virus. It cleared up but then it struck again on Memorial Day weekend. At that point he was probably 130lbs ( he lost 20 lbs with first illness). This time there wasn't as much throwing up but he went to the bathroom about 20-30 times a day or more. He has every test in the book. He was even scheduled for colonoscopy when finally after three more weeks his diabetic doctor ( this was the lab he had the blood test for the GI doctor) called and said... It looks like it could be celiac. By this time he was down to probably 105lbs. We stopped weighing a week and a half prior when he was at 115. He couldn't eat anything and was basically trying just ensure. He didn't even have to take much insulin because he couldn't eat anything and when he would get low it was forever before it would come back up. We if course had to wait for the GI nurse to call but I had already done my research about celiac. When she called us finally he had pretty much begun to lose his voice. He explained his weight inability to eat anything and she spoke with the doctor and he agreed that he could start the diet. It was very scary... I'll tell you that. To this day I have never understood why they never put him in the hospital. It was terrible because I basically was watching him starve to death. Anyway. With in three days he was gaining weight and thd bathroom issues were 90% better! He had some symptoms ( minor bathroom issues he didn't think anything of, seizures with low blood sugars, and during the year prior terrible smelling gas) but nothing that he would ever go to the doctor about. His GI said he has probably had celiac for many many years! Now he follows a strict diet and weighs 185lbs! He sleeps all night long and doesn't feel as tired.
Oh and we got my son (9)checked too at the advice of my husband's GI. And sure enough he has it too. He has about three years worth of damage according to the ped. GI. He had zero symptoms that were noticeable!
Well that is enough of my book, but it is a detailed story! :)
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#839138 Celiac And Weight Gain

Posted by Skysmom03 on 26 November 2012 - 07:20 PM

People are different. Many people lose but some do gain. I think it depends on how malnourished you were. If your food was passing without being absorbed that will make a difference. My husband has had in diagnosed celiac for much of his life. He could never get above 145lbs. He wasn't diagnosed with celiac until he almost died from it. He could not eat. It went right through him or he threw it up. He got down to about 110Lbs. His doctor said his one stones were horrid.... No villi at all completely smooth. He went on the die and now 16 months later he weighs and seems to have leveled at 182 lbs.
My son also has it( we checked him because of his dad). He doesn't look celiac at all. Always gained weight easily and at his last drs appt he was 85 lbs. he gained five pounds in two months since his diagnosis. His pediatrician said it is just evident now that even though he showed no signs his body wasn't absorbing as it should ( despite gain a couple of pounds every three months prior to diagnosis, his BMI had been decreasing over the last year....)

Good luck to you just attempt to exercise to balance the new weight gain out.
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#831034 Outgrowing Celiac

Posted by Skysmom03 on 19 October 2012 - 06:51 PM

I don't feel the risk of lymphoma or melanoma or another type of cancer is worth the risk of letting my child eat gluten again. Even if he has no symptoms from eating it one or twice .... Could just be that he isn't that "sensitive" to it.
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#830784 A Relative Is Diagnosed Celiac- Won't Go Gluten-Free

Posted by Skysmom03 on 18 October 2012 - 03:51 PM

My husband got really sick like that before he found out. So sick that he would do anything to feel better. I completely in my mind believe that he would have died within a week if they had not discovered the results of the blood test when they did. He was told to go gluten free before they even confirmed with thd endoscopy. It may take her hitting rock bottom for her to do it unfortunately. Hopefully it won't be too late by that point.

My son also has it. He had no symptoms or at least noticable ones- but after the biopsy we found out the doctor thinks he has had it for at least three years. We only had hom checked because of my husband. We have encouraged other family members to get checked but they won't. My mother in law recently found out that she has a rare form of rectal melanoma, and I can't help but wonder if she too has it( melanoma is a risk with untreated celiac disease). I just think too many people think if they don't feel bad then nothing is wrong.... Trouble is they don't realize that they don't feel that great!
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