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Kat L

Member Since 17 Oct 2012
Offline Last Active Aug 22 2013 02:22 PM

Topics I've Started

Interplay Between Gluten And Dairy

21 August 2013 - 11:32 AM

I've been off of gluten since December 2012, and have been experimenting with dairy-free for the last month and a half.  I went off of dairy because I kept getting gluteny-reactions despite being VERY careful and really not taking any risks.  Since being off of dairy, I haven't had any of my hyper-sensitive gluten reactions.  I have done 2 dairy challenges (both social situations where it was much easier just to do a dairy challenge rather than explain I may not be able to eat dairy either...) and I didn't have any specific reaction to the dairy except maybe for some increased joint pain and stiffness, particularly in my hands.  (Hard for me to discern because on one challenge I had used an electric sander for several hours the same day and on the other challenge occasion I had driven about 350 miles that day with my usual death-grip on the steering wheel).
Does anyone else have similar experiences where eating dairy makes one more sensitive to gluten?  Do you have any reactions other than stomach reactions to dairy?

Flour Organization?

31 March 2013 - 06:35 PM

I'm looking for some good storage containers to keep the various gluten-free flours organized.  The POP containers from OXO seem pretty good, but they're pretty pricey: http://www.oxo.com/p...tainer-set.aspx

I was thinking of using chalkboard re-writable labels to label them and keep them straight, although I'd kind of like to keep the original package label with them as well...


Has anyone come up with a better/cheaper solution to the problem of too many flours?




Help Interpreting Hla-Dq Typing Results

29 March 2013 - 05:06 PM

I just got my HLA-DQ typing results back, and I'm not entirely sure how to interpret them.  I know that I'm positive for HLA-DQ8 and therefore am genetically predisposed to the potentially developing celiac.  But, what I want to know is if there's anything else that can be gleaned from the results, including whether I have 1 or 2 copies of the genes?  My dad's had a number of the same symptoms as I have for many years and is on the verge of trying gluten-free.  If I was able to tell him that I have 2 copies of the gene and therefore he has at least 1 himself, it might push him over the edge into actually giving it a shot.  

My results:


         Hla-Dq2:   Negative

         Hla-Dq8:   Positive
         Hla-Dqa1:   3
         Hla-Dqb1:   301
         Hla-Dqb1:   302
         Typing performed by PCR and hybridization with sequence
         specific oligonucleotide probes (SSO).
         The patient has one of the HLA-DQ variants associated
         with celiac disease.
         More than 97% of celiac disease patients carry either
         HLA-DQ2(DQA1*05/DQB1*02) or HLA-DQ8(DQA1*03/DQB1*0302)
         or both. However, 39% of the general U.S. population
         carry these HLA-DQ variants, as a consequence, the
         presence of HLA-DQ2 or DQ8 or both variants is not per
         se diagnostic of celiac disease.




Background on me - I had negative IgA tests and endoscopy (while eating gluten), but also had low vitamin B12 and D3 results.  My symptoms are definitely consistent with celiac and have improved IMMENSELY while being gluten-free (3 months and counting).  When I have accidentally had gluten (once in ibuprofen pills and once in an Odwalla juice drink) I've had a severe reaction that lasted 3+ days, which was the same reaction as when I purposefully ate pizza to test it.  So regardless of the test results, I'm operating under the assumption that I have celiac...and happy for it.

Normal Biopsy - Still Think It Could Be Celiac

06 January 2013 - 10:47 AM

I got my biopsy results the other day, and they were normal (6 samples, normal). Other than a mild Schatzki ring and sliding hiatal hernia, the doc said everything was normal and nothing would explain any symptom other than a little heartburn. I, however, am not convinced. I've stopped eating gluten and will give it a month or two, and see how many of my symptoms resolve. I also plan on getting a 2nd opinion from another GI. But, at the same time, I'm concerned that if the GI is right and I don't have celiac, that I could be missing the real source of my problems.

So, I have 2 questions:
1) Is there anything else that can cause B12 deficiency?
As far as I know, there's not eating meat or dairy (which is definitely not the case for me), Grave's disease (I'm overweight, not under weight so I don't think hyperactive thyroid is my deal), and pernicious anemia/lack of intrinsic factor (my primary has ordered a test for intrinsic factor in February along with follow-up B12, so we'll see if that's the case pretty soon). Is there anything else that's a possible cause? My B12 was at about 300, and that's with me periodically (not routinely at all) taking a B-complex vitamin supplement.

2) When you get glutened, generally how long is the delay between eating gluten and a reaction?
I've been gluten free for 8 days so far. I haven't had my most common symptom, which is really extreme bloating, all week - that is until last night after dinner when I blew up like the staypuff marsmallow girl. I went through everything I ate all day yesterday and I'm sure I didn't any gluten. Then I realized that the day before I did totally gluten myself. I had one of those green Superfood Odwallas for breakfast and didn't check the label at all- like a total bonehead, I thought it's just juice! no gluten to worry about. BUT, that was about 36 hours before I got the bloating. So, is it possible that the Odwalla caused my bloating? Or is this all a coincidence? Either way I'm going to stay off gluten and in another week or so purposely test myself with something gluteny.

Hiatal Hernia And Schatzki Ring

27 December 2012 - 10:04 PM

I had my EGD today and it'll be about a week before I get the biopsy results back. But, the doc did give me her observations. Apparently I have a sliding hiatal hernia and a Schatzki ring (mild, non-obstructing) - and everything else looked normal. I haven't been able to really talk to my doc about it yet, because I was pretty out of it and didn't have such a great reaction to the sedation. From what I've gathered reading on my own today, it doesn't seem like either of these are a big concern right now, but should be watched to make sure they don't get worse.

I wonder if the hernia could have been caused by my constant severe bloating. I have often noticed that after a big meal, particularly when I'm with other people and can't burp, that I have trouble breathing. Does anyone have any experience with either a hiatal hernia or a Schatzki ring?

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