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sisterlynr

Member Since 20 Oct 2012
Offline Last Active Dec 30 2013 04:55 PM
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#896528 DH Photo Bank

Posted by sisterlynr on 19 November 2013 - 07:39 PM

I asked my dermatologist about Aczone but since I was allergic to sulfa, said I couldn't tolerate it.

 

From what I read it takes several weeks to ease the rash. .. like 2 - 3 months.  Posting a web site if ok with the moderators?

 

http://www.aczone.com


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#868170 Dermatitis Herpetiformis ... My Journey

Posted by sisterlynr on 11 May 2013 - 09:16 PM

Sure sounds and looks like you have found your answer, IMHO.  This is a great place to find information about Celiac.  I too was helped and stumbled onto this site by searching the net.  

 

I take Dapsone which has helped spare my sanity!  There is also a topical form of Dapsone. . . you may consider this in addition to your diet.  Wish you the best!

 

 


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#866352 Reputation ?

Posted by sisterlynr on 02 May 2013 - 07:43 AM

Okay. . . glad I asked.   :)   So that is similar to the 'like' on Face Book. . . . that's cool.  I have read comments and wanted to like or agree, without writing a reply.  

 

Just to note, this site led me to my diagnosis and I recommend it to to so many people.  I was desperate for a diagnosis so I could receive treatment.   I went online and found questions/replies from people on here.  Once I saw the photos and heard all the like symptoms, I knew without doubt I'd found the answer.  That led me to discussing DH and Dapsone with my PCP.   I'm now on the road to healing.  So many of you have been helpful and it's been a life saver for me!  Thank you so much.   :D 


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#866331 Reputation ?

Posted by sisterlynr on 02 May 2013 - 05:59 AM

The 'reputation' on my profile is marked neutral, who decides this and who puts the post into this category?  I also noted it is marked (2) but I only see one post under that category.

 

I reread the post and don't view it as offensive.  How do I see the other post if there is indeed two posts that have been reported?

 

I would gladly delete the postings as I don't want to offend anyone on this site.  How do I delete a post, if that is the case?  Can anyone see the reputation category and the posts?  If the posts were deleted would it be removed from my profile?

 

Thanks   :) 


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#862925 Gluten Reaction- Is It Celiac?

Posted by sisterlynr on 10 April 2013 - 06:46 PM

If your still overweight I would say your not very sick YET because sick people from celiac/gluten intolerance are beyond skinny _always_.

 

But this concerns me "Just before 2am I woke up sweating and having horrible stomach pains and very very nauseated"

 

That's how it first started for me, once in a while... twice a while....... couple times a day... You'll loose the pounds alright if you keep on the gluten eventually once your gut is full of holes :), then you'll be desperate to gain weight like poor old mate Bryan in the leaky gut section. In any case if I were you or anyone on the planet I wouldn't eat gluten again.

 

 

Oh my . . . where did you get the idea that Celiac patients are always skinny?   

 

I know several friends, family members and myself that are not skinny but overweight.  The weight gain is attributed to the body not absorbing nutrients and going into starvation mode.  Your body then stores fat, to protect the vital organs.  I've read Celiac can cause diarrhea/constipation, weight gain/loss. . . on and on goes the list.  Not every patient has the same symptoms.

 

I have lost 35 lbs in the past 5 months since eating gluten free.  My iron, blood count and B12 have come back to a normal level and my body has also responding to releasing the fat that was stored.  I was always the patient that didn't eat 'what they weighed' and even my doctors didn't understand the why. . .   I was under doctors care for weight loss and it just didn't happen.  I'm am more than happy, along with my doctors to see my body respond to the lack of gluten.  

 

Most importantly for me, the skin rash (DH) is clearing up being gluten-free and my blood counts are back to normal.  I am ecstatic that I'm  experiencing weight loss!  


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