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sisterlynr

Member Since 20 Oct 2012
Offline Last Active Private
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Topics I've Started

Reputation ?

02 May 2013 - 05:59 AM

The 'reputation' on my profile is marked neutral, who decides this and who puts the post into this category?  I also noted it is marked (2) but I only see one post under that category.

 

I reread the post and don't view it as offensive.  How do I see the other post if there is indeed two posts that have been reported?

 

I would gladly delete the postings as I don't want to offend anyone on this site.  How do I delete a post, if that is the case?  Can anyone see the reputation category and the posts?  If the posts were deleted would it be removed from my profile?

 

Thanks   :) 


Histamine Levels & Dh ?

25 April 2013 - 06:21 PM

Anyone have information or point me to articles to answer my questions?  I had 2 more biopsies in February taken correctly by Dr. F, head of Dermatology at USF.   He didn't think I would have a positive for DH due no gluten and on Dapsone since Oct/2012.   The biopsy only showed inflammation peri lesion.  Since the rash responded to diet and Dapsone within 3 days, my medical dx is Celiac-DH which was agreed on by 3 of my doctors.

 

I decided in March that I would stop the Dapsone to see if just the gluten-free diet would control the rash as my skin was so much improved.  It took about 10 days and the healing lesions renewed with a vengeance.  My PCP and Rheumatologist told me. . . "Don't stop the Dapsone again!".    :wacko: 

 

My questions (finally)

 

1)  I do much better with taking Benydrl, so does this mean I have too much histamine or not enough?

 

2) Does anyone have dimpling of your skin?  I noticed this when applying lotion after the rash.  Never felt this before the rash became so horrible a year ago.  It feels like the tissue under my skin has separated.  This is all over my body.

 

3)  Has anyone tried a gluten-free, low sugar, non-dairy meal replacement drink?  My PCP gave me the OK to go liquid.  I am disciplined enough to follow a liquid diet.

 

4)  Is there a skin cleansing, either from inside or out that will help speed up the removal of anti-bodies?

 

5)  Dr. F has ordered a new ANA blood analysis before I can have light therapy.  Has anyone had light therapy for DH?  Did it help heal the purple and darkening of skin due to the DH?  

 

Thanks for any help.   :) 

 

 


My Thoughts On "types" Of Dh

06 February 2013 - 01:47 AM

I read the online copy that is pinned regarding types of DH.   It was obvious that DH has been around for many years and doctors did not know the cause.   I have had all of the various types of lesion presentations that were mentioned in this book.

I had to chuckle when reading  the article when he stated it was a mental and nervous issue. If the book is still referenced by doctors today, this may be why Dermatologists ask patients to see a mental health doctor.  I can imagine doctors thinking it was mental/nervous due to the intense itching, burning and stinging when they weren't aware of the cause.

Diabetes And Dh Rash

19 January 2013 - 12:55 AM

I have Diabetes Type II and DH.  I wonder if my rash isn't healing quickly could be attributed to Diabetes?  Would Diabetes cause the rash to last longer even though I am taking Dapsone and am eating gluten-free?

The rash is so improved with the dosage of Dapsone that I am taking but curious about other people and their reactions with DH and Diabetes.  If you have any information to reference, please advise.

Hair Loss With Dh Rash?

19 January 2013 - 12:38 AM

My hair has thinned so much that I'm getting worried.  My hairbrush is full each time I brush my hair.  Do any of you DH people have the same issue?

When I peel off a scab from my scalp, there are usually 2 or 3 hair follicles that are attached.  

Does anyone have a suggestion to prevent hair loss?  This head of hair is new from 2008 (chemo) and it is so thinned out.   :(   I use a fabric covered ponytail band and I now have to twist it around 2 extra times due to how thin my hair is now.

 

 

 


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