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Member Since 22 Oct 2012
Offline Last Active Mar 25 2013 03:11 PM

Topics I've Started

In Need Of Venting!

15 March 2013 - 09:05 AM

I'm just feeling really frustrated. Every Easter, my family and I all go out to a restaurant for lunch/dinner and then go back to my aunt's house to hang out and play games and stuff (yeah, we're one of those families). So sine this is my first year beign diagnosed, my mom and I have been telling my grandmother and my aunt that we really should go to a restaurant that has a separate gluten free menu. It would be the only respectful thing to do. Because what else am I supposed to do? Sit there watching everyone else eat and have me sitting there drinking a water or something, starving? So, last night, because no one can decide where to go since no one wants to go back to the place we went last year, my aunt put the decision up to my cousin. There's only a few good restaurants around here that have really good gluten-free menus that neve rhad made me sick in the past so I really trust them. We told my cousin that we should go to one one of those places and she says that they all want to go to an Italian restaurant (which none of those around here I trust) and they're not choosing a place with me in mind. My mom told her that wasn't fair to me but she still didn't care. So now my parents and I have to miss out on family time and are basically getting pushed out of celebrating Easter with our family. Our family has every holiday together. There are even Memorial day and Labor day cookouts. We even occassionally have family game nights and all go over to one of our houses to play Catchphrase. But this really hurt my feelings. Because we all know that if it were one of my three cousins who had Celiac, there would be no question as to where we were going to be going. It's not like the places I can go are dedicated gluten-free restaurants. They can get whatever they want there. My menu is completely separate. It's just diffciult to accept that my own family wont even consider me and my health. I've explained it to them enough over Thanksgiving and Christmas and even then I had to provide all my own food. I had bologna sandwiches and Udi's bread and a baggie full of tostios on Christmas, while everyone else ate Chicken Parm and baked ziti. But that was different. That was at their house where I could bring my own stuff so I didn't mind. And the only person in my family who has my back in this is my mother. My grandmother didn't even care. It's just not fair that I'm getting this type of treatment. It's not my fault I have a disease. It's not my choice to eat gluten-free. And that's how they're acting like it is, that I'm choosing to eat this way and it's not for my health. I mean, I can't say I'm surprised because it's always been this way inmy family that my parents and I get look down upon and treated like the black sheep but I thought that maybe, just maybe, they would understand and involve me like good families do. Families are supposed to support each other and help each other. In mine, it's only if you're in that side of the family. That's the only way they care about you. They make me feel gulity for having an uncontrollable disease. It's just not right. Sorry for the rant but I'm just upset and hurt and I know this is a safe place to do just that.

Feeling Great But Can't Eat!

04 January 2013 - 11:01 AM

Since I was diagnosed in October, I've been doing really well on this diet. In the beginning, I was still feeling terrible and thought I was doing something wrong but then I did more research and saw that you won't feel better overnight so I held out hope. I started getting better at reading labels and knowing what to look for and realized that I wasn't eating some of the right stuff. So October and November were still very iffy for me. That darn nausea just wouldn't leave me alone! But finally and happily during the last couple of weeks of December, I felt so much better. No sharp stomach pains and no extreme nausea. It has been glorious to not feel like dying everyday again. I'm finally healing and it's amazing. I got thrown a curveball though the week before Christmas. I had almost a full week of no nausea and then got a stomach bug so that was no fun at all haha. Once that went away, I went back to feeling just fine. I still do! I'm so happy at the way I feel. And since being on this diet and not being able to eat all the fast food and junk i used to eat, I've lost 13 pounds. I can finally live my life again without pain all the time. It's amazing. But one thing has been happening lately ever since I started feeling better and not feeling sick anymore. I get full so quick. Way too quick. I eat a couple of bites of something and get so full that I feel like I ate a five course meal. Like yesterday, I ate a small bowlfull of Tostitos (my fave go-to snack lately) in the afternoon. It was the first thing I ate yesterday. It filled me up for the rest of the night. We had cheesburgers for dinner and mac n cheese (mine obvioulsy with gluten free pasta) and I couldn't even eat it. I was still so full hours later from the chips that I took two bites of the macaroni and ate only half of one of the cheeseburgers when we each could have three and was ready to burst i felt so full. Is this normal when you start feeling better? Is it normal at all? I know I heard that usually when you go on this diet you actually start to feel really hungry but it seems I'm in the other direction. I feel like I'm barely eating everyday because any little thing I eat fills me up for the rest of the day. And after all that, I woke up today still feeling full from yesterday. I'm forcing some food into me right now because I have to eat obviously but I don't really want it. Just wondering if anyone has any insight to this. Thanks!! And happy new year!

Caramel Coloring Confusion!

26 November 2012 - 07:35 PM

When I was first diagnosed, my Gastrologist gave me a bunch of information on hidden sources of gluten and one of them was caramel coloring. And when I went to my dietiton a few weeks ago, she gave me stuff that said the same thing. So I've been competely avoiding any type of colas like Pepsi and Coke. My favorite soda is Dr Pepper so I've reluctantly been avoiding that too. I haven't been a big cola drinker for the last 4 years because I've had a few kidney stones in my lifetime and my urolgist told me that the caramel coloring in colas can contribute to harming your kidneys and forming stones (it still doesn't help that cheese is my favorite food since calcium is the main source but I digress). So I would ocassionaly treat myself to a Dr Pepper or Pepsi or Coke every once in a blue moon. It's not really a huge deal but I'm just confused about caramel coloring because I've read things where Coca Cola has said that their products are gluten free. Also Wishbone italian salad dressing says gluten free but has caramel color in it. Also, I have a family friend who has Celiac pretty bad and is very sensitive and her favorite drink of all time is Pepsi. It's the only thing she drinks all day long and she says it doesn't effect her at all. I've done some research and I found that some sites I've looked at said that in the US caramel color is made from corn. So I'm just a little confused as to whether it's really safe or not. Just wondering if any of you have some insight on this. Thanks!!

I Could Punch Myself Right Now!

09 November 2012 - 01:15 PM

Okay so I've been being really good with this gluten free diet for the last almost month now since I've been diagnosed. I'm doing research and reading labels and being really good with just doing whole foods as much as possible so I can reassure myself I'm not being secretly glutened. Well...it happened anyway. And a lot of it. Literally about 10 minutes ago now. I was in a rush this afternoon and had some stuff to do so I rushed out of the house and told my mom to make me something to eat because I was starved and hadn't eaten all day. So when I got home, I don't even think about it and ate what she cooked. I can't believe I didn't even think about it. All I've been doing is thinking about gluten and making sure it does not get into my body and here I was, chomping away on 4 peices of heavely breaded chicken and not even stopping to realize it. UGH! I feel so dumb right about now. I think my mom wasn't thinking about it either because she wouldn't have made them for me. I don't know what was hanging over our heads today that made us both completely forget about it. It's really weird. Maybe it's because it's only been such a short time...I'm not sure. But anyways, I'm now getting a little nervous about what I'm going to experience. The past 3 1/2 weeks, I still haven't felt much better to begin with but now that I've actually eaten a lot of obvious gluten, I'm worried. Before I was diagnosed, I didn't get D like I know some people get but I was having these terrible sharp stabbing pains all over my stomach and a lot of gurgling in my stomach as well as extreme nausea. Should I be expecting that or something much worse considering I've been gluten free for a while? I'm just in shock over how absent minded I was today. Thanks!

The Most Horrendous Pain I've Ever Experienced!

29 October 2012 - 04:51 PM

Hey guys! This is kind of a little embarassing but I'm a little concerned. I have no idea if this has anything to do with celiac or not but I figured I should mention it to see. I've heard this is very common with everybody in the world but sometimes throughout my life I've always gotten these random extremely sharp and paralyzing pains that last for literally 2 seconds in, I guess let's call it the butt (lol). My boyfriend gets them all the time too. They bring you to your knees. They're a pretty bad feeling. But last night it lasted for over 2 hours. I was crying and couldn't breathe it made it hurt more, I couldn't stand, sit or put pressure on my backside. I was laying on my bed on my side crying and screaming in pain like I was giving birth or something. It feels like someone is stabbing you through your butt and the knife is exiting through the front pelvic region. It's razor sharp like electricity. I've had 3 kidney stones in my life and this pain yesterday was the worst thing I have ever felt in my life and if anyone has had or knows someone who has had a kidney stone, that is the worst pain people say they've ever experienced. But this, it's completely paralyzing. They've always lasted for a few seconds in the past. But this was for hours. That can't be normal. I was just wondering if anyone has ever heard of this happening. Also, I've noticed over the last few days that my stool is dark green. I think everyone's had it being green before for a day but this has been for the last few days. It's just a dark green that's kind of mostly coming out in marbles. I know that eating a lot of greens can do that but I haven't been eating more veggies than I normally ever did. i know this is probably gross to talk about but I was just a little curious because that pain was horrific. I couldn't even move my leg without it feeling like someone twisting a razor thin sharp knife in my bottom. This actually happened to me a month ago too but that one lasted for 15 minutes where I was lying in the same position on the living room floor. Then I thought that 15 minutes was odd and terrible but last night with it lasting 2 hours I got really scared. I took a lortab my gastro perscribed me and it started to slowly drift away. But I was so worried last night and still am. And with my poo being dark green, I feel like something odd is going on. Thanks everyone!!!

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