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GlutenFreex4

Member Since 24 Oct 2012
Offline Last Active Dec 12 2012 03:54 AM
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Topics I've Started

Update & Bone Age Testing

01 November 2012 - 04:35 AM

On the prompting of several of you (thanks again!) I contacted my son's paediatrician on Monday and requested blood work and a bone aging X-ray be done on him. I requested the X-ray as well because both a family member requested this done on his child (the child's result came back with bone age spot on their actual age) as well as a friend (the child's bone age was delayed). In both these cases, the children were very small for their ages. I learned yesterday that they seldom do this X-ray because often the results are somewhat devastating for children/parents who are hoping to find out more growth can be expected. And, often this is not the case. They are just destined to be smaller people.

My son's appointment to review the results isn't until next Friday however, we also had an appointment booked for yesterday at the allergist. I hadn't anticipated his tests or X-ray results to be so quick nor that the allergist (both work under the same umbrella of paediatric care) would have the results in his file. He did!

After I gave him a rundown of why I was concerned my son may have either a wheat allergy and/or issues with gluten he told us the serum blood work was negative for celiac. He also said that while celiac was outside his specialty somewhat, he felt the likelihood of celiac was low at best even before the test. Then he said that my son's bone aging X-ray, and the reason that he is so tiny, came back at age TEN! My 13.5 year old son has bones most similar to a ten year old :o And, given this result, which according to the allergist is unbelievably great news, it means that my son is a late bloomer and will simply grown later/longer than his peers. Furthermore, given his result, his growth chart needs to be adjusted and now places him just off the 75 percentile in both height and weight. It felt like Christmas for my son yesterday! All I had hoped for with the X-ray was to show that he was a least a little bit delayed so that he would have some extra growth. I never once thought it would be so substantial.

All that said, we are still gluten free and will be discussing the results of the serum test with his doctor next Friday. I still want to see what, if any improvement, we will find being of gluten. Though, I must admit that I'm feeling quite sluggish these past couple of days and think I'm might be going through withdrawal! Did anybody else find this?

Oats

26 October 2012 - 04:46 AM

On my jumbo shopping trip to replace my kitchen staples with gluten free ones I came across "Only Oats" by Avena Foods. The packaging and their website indicate that their oats are uncontaminated with wheat etc. Their muffin mix is incredible! I've baked a few dozen muffins and my kids love them :D Or, maybe they just love that I'm actually baking for them! It's a Canadian product so I'm not sure about their distribution but they receive a stamp of approval from our household.

Milk

25 October 2012 - 07:25 AM

Can you please tell me if you stopped milk for a period of time to allow healing of the intestine? If so, for how long? Would it take longer for healing to occur on milk or is this a case-by-case situation? Milk and milk products are a big part of my son's diet and I would prefer not to have to take him off this unless absolutely necessary.

Whey?

25 October 2012 - 07:11 AM

I have always assumed that Whey is a wheat protein and as such, not gluten free. Can I continue to use whey for smoothies?

New Here With A 13 Year Old

25 October 2012 - 05:04 AM

I'm so happy to have found this forum. I have a 13 year old son who has yet to be diagnosed with either gluten intolerance or celiac however, I do suspect one or the other. He will be seeing his allergist (on our request) next Wednesday to have the basic skin testing done for wheat as well as other allergens. I know that skin testing isn't exactly a perfect science so regardless of this result we will pursue additional testing as required. Do many people here have experience with either the blood test and/or genetic test? Is one or the other a better way to go? And, if it is discovered through one of these methods that he is celiac, does he HAVE TO have the biopsy? What is the upside to this? If we are firm on our plans to be gluten free, does he need to undergo this procedure?

Our story is actually quite uneventful and if it wasn't for a close friend's son suddenly growing nearly four inches when taken off gluten, I doubt I'd be on this forum today. He, like my son, was on the small end of the growth chart. Now he's "average". This hasn't gone unnoticed by our family, especially my son! He is showing NO SIGNS of puberty, is hovering around the 5th percentile for height and closer to the 10th for weight. But, he has s-l-o-w-l-y climbed up the chart in this manner for a number of years so (apparently) neither his doctor nor his allergist (he has well controlled asthma/seasonal allergies + cats/dogs) have been concerned. Honestly, I wasn't myself until recently. It feels as is he's stalling right when he should be growing like a weed. His younger brother is now a solid couple inches taller and close to five pounds heavier. It is so difficult for him : (

Aside from his size, there really haven't been any red flags. However, looking back, he would occasionally complain of a sore stomach - especially after a large pasta meal. I just assumed he overate. He does occasionally have headaches but we conveniently tied that to his lack of water intake and him being dehydrated. He is constantly congested and we really haven't been able to get a hold of this. He is on Nasanex with little success. Recently though our toilet failed to flush properly after he visited it. And, there was a paler than average stool left behind. It was enough to catch my attention. Again, likely a sign...

To make this easier on my son, as well as me, we have elected to adopt a gluten free diet for our entire family. The kitchen has been de-glutened and we're on day four now... The more I've recently read on wheat, the less I feel it isn't healthy option for any of us! I know it's going to be a struggle however, I am determined to make this work.

Because he isn't suffering outwardly as much as some other kids clearly do, my greatest hope is that he will start to grow. And, soon! I would be so interested in hearing about others experiences with catch up growth in pre & early teens. I know that often young children grow quickly after adopting a gluten free diet. But, what about "older" kids? How long did it take to see some growth?

Lastly, my son is a big milk drinker. Does he have to give up milk initially to allow healing? If so, for how long?

Thanks for your help and advise in advance!