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Member Since 25 Oct 2012
Offline Last Active Jul 01 2014 01:05 AM

Posts I've Made

In Topic: Help. Need Some Advice

27 June 2014 - 05:51 PM

I had a blood test for celiac done about two years ago and it was negative, however my GI at the time said I could still have it. Basically when I eat gluten I get a metallic taste, and also deal with joint problems. Not eating gluten I don't taste metallic anymore, so not sure what that means. 

I've been gluten-free for four months now because my insurance wouldn't pay for my procedures and I couldn't afford them out of pocket. So I decided to do what I could to help the situation and I've noticed I have less watery stools, and now my poop is more solid (yet still not one solid piece), however if I get soy or some other thing I'm not supposed to have I have loose stools again. 

I guess when I do get my tests done I'll have to eat gluten for a bit so they can see, but my main concern is with PI, or pancreatic insufficiency. I should have clarified that my doctor didn't actually say chronic pancreatitis, he actually said pancreatic insufficiency, but I just assumed he meant the former. Now I'm beginning to wonder if he meant PI as a result of ongoing IBD. 

So, your fat malabsorption was due to damage to the villi? I'm asking because you said now you don't have that problem anymore. How long did it take before you healed enough so that you no longer had fatty stools?


In Topic: The Uncommon Question

22 November 2013 - 10:41 PM

It definitely stops after about eight hours of eating, sometimes longer, because I didn't have it at all for weeks while on the gluten-free diet. Mind you, I didn't have pizza the whole few weeks either so IDK. 


BellVie, you said that you used to get a similar taste in your mouth after eating baked goods, I'm guessing this was before you were diagnosed? So, then did you celiac cause this or was it a food alergy? Just a little confused.

In Topic: The Uncommon Question

21 November 2013 - 09:17 PM

But was this related to your celiac or a food allergy?

In Topic: Lower Right Sharp Pain

13 September 2013 - 10:13 AM

Yea, this is down lower like my appendix area, but I know its not my appendix because I can press on it with no pain.

In Topic: Fatty Stools And Confusion

09 September 2013 - 07:48 PM

"End Stage Celiac" is not like end stage cancer. Don't let the term scare you. It means your small intestine villi are completely eroded flat and your digestion is all screwed up. It's the "end" of your villi, but not THE end. Your villi can heal and re-grow. In fact so easily and fast that just a few months on a gluten free diet can screw up your tests for the disease.


Fat is digested by bile from your liver and stored and concentrated in your gallbladder. If you have floating stools, and you've had your gallbladder out, you can try taking a bile salt capsule with every fat containing meal. When I stated the bile salts, my poop sank, and smelled better! This also means the nutrients are being absorbed better.

Where do I get bile salt?

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