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Member Since 26 Oct 2012
Offline Last Active Nov 30 2012 06:20 AM

Topics I've Started

Update On Us

28 November 2012 - 10:39 AM

My daughter had her endoscopy (I asked last month if it was needed). It came back postive for Celiac. We started our gluten-free journey on Friday. I am doing it with her because even with my blood work coming back negative, I think I may have it. I also have thyroid and sjogrens and hope to see an improvement there.

She is doing great. We have been enjoying our gluten-free foods, and she is so excited to still be able to have Eggnog. Our first non family outing is on Saturday at Barnes and Noble. The school is having a fundraiser. They are making school colored frappachinos. She was disappointed that she won't be able to have one, but I promised something "good" for her in its place.

She has had a sloshy belly, the first symptom that started me researching and realizing everything else made sense too. After only 4 days he sloshing is nearly gone. She is so excited about that. Now we are hoping that the constipation improves soon as well as weight gain. I have noticed an improvement in her appetite and she has even gone back for seconds for dinner the last two nights.

Our first b-day party will be on Dec 8th. It is at a really cool pin ball place so hoping that distracts from what she can't have. But as I just read the other posts about the cupcakes, I will have one in hand for her. Yes, it seems overwhelming at times, like in the grocery store. But I do love the options. It seems it is all about mind set. I just have to think about what we CAN have rather than focusing on what we can't :-)


7 Year Old Diagnosed Yesterday

26 October 2012 - 08:32 AM

My 7 year old was diagnosed yesterday - her celiac blood panel came back postive. Her symptoms are sloshy belly, going potty during meals, and very small stature.

The Family Dr said for us to seek a pediatric GI. I found one and set up an appointment for 12/6. I asked if she could go gluten-free now or if we should wait until after the appointment. I was sent to the nurse and left a message, waiting on return.

I have two questions 1) why does she need to see the GI, we have the diagnosis, shouldn't we start the diet? and 2) what are they going to do that the GI - after a panel has come back positive?

Thank you so much for your help. I have been reading the board a ton the last two weeks and have gained so much knowledge.


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