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Member Since 31 Oct 2012
Offline Last Active Nov 18 2012 03:41 PM

Posts I've Made

In Topic: Celiac Testing - What Should I Expect? (And A Backstory)

10 November 2012 - 06:59 PM

I have another question before my appointment.

The results for my IgG test aren't displayed in the numbers that I've been seeing on here. My Anti-Gliadin IgG was 514, the guide said that a result under 140 would be "normal." But the only scales I can find online show that a result under 10 is "normal."

Can anyone help me interpret this?

In Topic: Celiac Testing - What Should I Expect? (And A Backstory)

03 November 2012 - 08:19 AM

Thanks for all of the information, everyone. It's good to know that I have a support system that I can turn to of people who have already gone through this! And it seems like if the test results come back negative for celiac I have a great resource to turn to anyway, because I definitely have an issue with gluten.

In Topic: Celiac Testing - What Should I Expect? (And A Backstory)

01 November 2012 - 05:20 AM

Thanks for the advice! I want to go in there with as much knowledge as possible, I want to approach these appointments with the most information possible, if I know what tests I might need, for example, perhaps the doctor will take me more seriously. (I've never met him before, he could be a really great guy, I'm just always weary about doctors not taking symptoms seriously, for whatever reason.)

I didn't realize about the vitamin D deficiency; I did know that celiac disease could cause your body to not absorb nutrients, I just didn't know which ones. I've always gotten sun burnt really easily, which may have a lot to do with the fact that I'm fair-skinned, but this summer I was reading about sunburn and vitamin D deficiencies. I started taking a vitamin D supplement and stopped getting sunburns as frequently and as bad. Maybe celiac/NCGI is behind this, too! I would just love some answers. I know that gluten is the problem, I just want to know what else is going on with my insides :/

Before I get to suggestions for your GI appointment - you seem to have a possible gluten allergy - an allergic reaction is nothing to take lightly. If your breathing difficulty/nasal congestion is escalating, you need to call your primary to order an epi-pen. The allergic response can worsen suddenly and is nothing to mess around with.

I never thought about that, but I also get wheezy and shortness of breath when I eat dairy. I never imagined that I could have a bad allergy to these foods, mainly because I've been eating wheat and dairy for 22 years, but I will definitely discuss this possibility with my doctor.

If I'm remembering your story correctly, you have not had Celiac blood testing yet. I don't know if it's possible for you to have the blood drawn before you go to the initial GI appt - perhaps your primary can order them and you can take copies with you.

Unfortunately only emergency room visits are covered outside of my HMO zone, and I haven't seen my PCP in 2 1/2 years, he's not very helpful, but at least agreed to give me a referral to the GI if I come in for a physical right before my GI consult, but if he changes his mind and deems a GI visit "unnecessary" and doesn't tell the insurance he agrees that I need to see one, I need to pay out of pocket anyway. So really I need to hope that my PCP knows even the slightest bit about gluten intolerance. (I absolutely hate insurance!)

Thanks for your help, I'm still a bit nervous, but it sounds like it was a good idea for me to have a journal of my symptoms each day. I did stop a few days ago because nothing was really changing, though.

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