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Member Since 01 Nov 2012
Offline Last Active Jan 04 2013 10:29 AM

Topics I've Started

Even More Confused

01 January 2013 - 08:55 PM

I went gluten free for 3 weeks, I am pretty sure I didn't get any gluten during that time. My tummy problems never went away, stayed about the same really. I decided to test and had a slice of bread, assuming my stomach would get really upset but it didn't. So does that mean maybe I don't have an issue with gluten? Do I need to go longer than 3 weeks before I test? (background: lots of symptoms, brother diagnosed, I have celiac gene but neg blood tests and pill cam study was normal)

How Long Would It Take To Feel Different/better?

06 December 2012 - 02:42 PM

I went gluten free 11 days ago. I'm feeling the same/worse possibly. I wonder how long it should take to feel better or at least a difference if gluten was my problem? I have had negative blood tests, inconclusive biopsy and a pill cam study that they said had nothing too concerning (whatever that means-they were looking for the source of my anemia), but I have a gene for celiac and my brother is a diagnosed celiac and I have so many symptoms.

Found Part Of My Blood Test Results...

06 November 2012 - 08:02 PM

I apparently only got page 1 of 2 of my results. I'm not sure anything is on the second page.

So this is what I have:

tTg ANTIBODY, IgA 2.69 (<20 negative)
DGP ANTIBODY IgA 2.28 (<20 negative)
IgA 129 (says range 81-463, which I assume is normal?)

So is it the IgA that you have to have a certain level of to trust the other results? And according to this mine is high enough to be reliable?


Also here is the report from the biopsy:
microscopic description:
Sections of the duodenum show an appropriate villous to crypt ratio without increased intraepithelial lymphocytes. No microorganisms, metaplasia, dysplasia or carcinoma is identified.
gross description:
recieved in formalin... and consists of multiple/tan soft tissue fragments aggregating to .8x.6x.3. TE 1 block. EV, PA (ASPC)

Am I Just Grabbing At Strings?

06 November 2012 - 09:16 AM

My husband told me last night that he thinks I'm grabbing on this celiacs because I want an answer but he doesn't think I have it and am grasping at straws. No he is not a jerk really (most of the time anyway:). He even was the one who brought up the idea of celiacs again after seeing show about it and thinking I do have all the symptoms. My brother has it, and I've been tested twice, both times my blood work was negative, I need to find it and can post, because I don't know if my overall numbers were low but I think the positive is greater than 20 and mine was 2.

I also had a endo/colon and my dr took 1 sample and it came back fine. So I had two tests that were negative.

I did the enterolabs and those came back positive but our dr says they are not something he believies. I do have one of the celiacs genes though.

So I guess I need a reality check..if my blood work was so negative, my intestines look good should I get off thinking I have celiacs? What else could cause all the symptoms I have (anemia (severe), gastrointestinal problems, hair loss, joint pain, numb/tingly arms, etc...)? I am having a pill cam endoscopy later this week because my doctor thinks my anemia is caused by a bleed that he couldn't find during the endo/colon, maybe that will shed more light on the matter. I know the other things they are thinking for the anemia is a bone marrow issue :/

Anemia/vitamin Deficiency Without Villi Damage?

02 November 2012 - 07:17 AM

If an endoscopy showed no damage to the villi could there still be deficiency problems? I'm wondering if I have celiacs because I have most of the symptoms and having very bad anemia and other vitamin deficiencies but my tests came back ok. Trying to figure out if the cause could still be celiacs without having the villi show damage?

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