So I am wondering if anyone has experienced the symptoms that I have trying to get off of nexium or has managed to get off of this medication or another PPI.
My problem started over 2 years ago when I had horrible acid reflux it burned my tounge to the point where my tounge was red and soft. I'd cough up stomach acid in the middle of the night a lot, my heart would pound like crazy, I'd have heart palpitations. I just felt awful.
No over the counter medication like zantac or tums etc would help. This was before I went completely gluten free so the gluten intolerance could have been causing the severe acid reflux.
Anyway, I didn't think much of taking nexium until I tried to go off of it cold turkey and the withdrawal started. After I ate I'd get really tired, dizzy, it was hard to concentrate, and then the nausea would come on. This wouldn't end, I'd feel hungry but nauseated and food wouldn't stop the nausea.
So I went back on it again because it's hard to deal with these symptoms and function properly in my life.
Now that I don't have many important things to do right now I decided to try again but take half of a dose, half was okay, then a quarter but these symptoms came back again except with a throbbing migraine, extreme nausea, sleepiness, it felt like someone was sitting on my chest. But I had no rebound acid problem like most people describe when trying to get off of PPIs.
I tried adding in DGL licorice, lemon and apple cider as recomended by other people, ginger, cutting back on acidic things or things that would irritate my stomach, but still nothing. So I had to go back to half of a pill again because I couldn't get out of bed or off the couch, within a few hours I was feeling normal aside from being really tired which subsided within a day.
It's really frustrating because the more i read up on these medications the more I want to get off of it but I'm physically addicted to it in some way that I haven't read about anywhere else. If I had known how difficult it would be to get off this medication I would have found something else to take instead.
I discussed this with my gastrointestinal doctor who told me outright that stomach acid isn't needed to digest or absorb nutrients. I couldn't believe what she was saying to me as if she was some kind of quack doctor. So I haven't been back to see her, she told me I could take nexium for the rest of my life.
But there are many studies that show that PPIs can make you succeptible to gastrointestinal infections, cause problems with vitamin uptake, weaken your bones etc. It's just not good to go on them for longer then 6 months.
Any advice or stories out there?