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whitepine

Member Since 03 Nov 2012
Offline Last Active Feb 23 2013 06:50 PM
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Topics I've Started

Dealing With Bad Doctors

07 November 2012 - 10:33 PM

So my doctor recently put me on micronor birthcontrol because she is convinced that my health issues are related to endometriosis. I've told her that Ive stopped eating gluten but she refuses to believe that it could be one of the reasons why I have so many symptoms. Unless I take the 200 dollar test which involves eating gluten products for two weeks.

Anyway, I am not at home right now and I started taking the micronor birth control, hoping that this would help some of my symptoms, especially with my periods. The first day I took it i started to notice the fat of my thumb turning really blue. I decided to ignore it and continue on with the medication but after 3 days of taking it, it was really visible. I asked my partner about it who also noticed it. So I didn't feel crazy about it since he noticed it.

I stopped taking it because it was quite painful at times, like if you were to hold your finger and let the pressure build up and then release it. It caused other symptoms as well but this was the one that concerned me the most.
After a couple of days of not noticing much difference in my hands I decided to seek out a doctor.
I spent 2 hours waiting in a doctors office when i finally got to meet with this doctor.

I told him my problem and at the time my hands weren't relatively blue. It seems to happen a lot more if my hands are cold or if I have not been resting.
He took one look at me and said that his hands were much more blue than mine and that nothing was wrong with me. After no more than a few minutes of explaining this to him he brushed it off and compared my 25 year old hands to his 60 year old hands. He told me to ride it out and continue taking the birth control and then rushed me out the door.

This isn't the only time that I've gone to a doctor with a symptom and have them basically tell me I am crazy.
I went to a doctor a couple years back before I realized my problems with gluten. She told me that there was nothing wrong with me and that I needed to get my head checked after I told her that what I was experiencing was more than IBS.
Its so frustrating when a doctor quickly brushes you off like that. I don't know if I should try another doctor about this blue hand thing which also started happening to my feet today or just ride it out and hope that it will go away.

IAfter my brief meet with this doctor today I am finding that my partner is almost silently shaking his head at me and has informed me that I have probably overacted. Which is upsetting because it's as if this quick meet with some stupid doctor has given him the idea that I am a complete nut job.

Have any of you had a bad reaction to a medication like this? where your hands go blue? the veins pop and your skin goes blue?
Have you guys had problems with doctors brushing you off after a few minutes and how do you deal with it?

New To Forum: Gluten Free Since April 2012

03 November 2012 - 06:38 PM

I've been reading a bit of this forum and so has my partner to try and find information and advice on celiac. Anyway, I decided to join in the conversation because it's difficult to get people to understand how I feel and actually get what I go through on a daily basis. So here I am!

After many years of being ill and finding some symptoms pointing towards a gluten intolerance I decided to quit eating wheat then I stopped eating gluten entirely.
I'm 25 now and I ate gluten products for my entire life even though I had problems with digestion ever since I can remember.

I had a severe bout of illness when I was 16 but I was only diagnosed with acute colitis and possible endometriosis. None of this was investigated further because of various reasons.
I've had doctors in the past tell me that it was all in my head and that I needed to go to a psychiatrist. This discouraged me extensively because I'd be incredibly ill and a doctor would tell me that it was just anxiety related or that I was suffering from IBS because I was in university.

It wasn't until I met my recent partner in October of 2012 that I actually started to push for better health. The reason being, he believed that I was truly ill and this wasn't something made up in my mind. Of course he had his doubts in the beginning he said because he didn't understand what gluten was. After observing a lot of my illness and also seeing me as a normal person at times and doing his own research, he convinced me to stop with the gluten entirely.

So in April of 2012 I started the gluten free diet. I haven't be diagnosed with Celiac and my doctor has offered to have me tested but it cost a fair bit and I am not entirely sure if it is worth the pain and trouble to start eating gluten again to get proper results.

After about two weeks of taking gluten out of my diet completely I stopped being nauseated, having frequent diarrhea, and being tired. It was quite amazing to experience such a change in my life at the time because I had spent years in the bathroom so to speak.

Everything seemed to be working out well, I learned along the way by accidentally getting glutened at times but I learned to always ask and always read the labels.

But after the first removal of gluten completely I noticed that certain symptoms either showed up or never got better. For example, I suffer from severe joint pain, abdominal pain, dry heaves and vertigo. We have thought that some of these symptoms are caused by nutrient deficiency, especially the dizziness.

I do suffer from anemia and I am trying to get that under control. That seems to limit the severe dizziness but nothing helps the joint pain, abdominal pain and dry heaves. There are things that come and go on their own at random.
I don't think it is associated with being glutened because my symptoms tend to be worse and there are more that happen when I eat gluten. I will get diarrhea, vomiting, severe vertigo, extreme exhaustion and stomach pain when I've gotten into gluten. My stool is often yellow and grey at this time and only returns to somewhat normal when I start to feel better. It takes me about a week or two to get back to normal after the 3 or 4 days that I am completely out of commission.

For years I have had problems with my bladder as well. I constantly have the urge to urinate as well as at night. Flank pain is a frequent problem when it is at its worst but I will get checked for UTI's and I don't have them?

I have high inflammation in my body at all times as well so I am thinking the bladder problem could be a symptom of this. It is also possible that the possible endometriosis could be a cause of this.

I find it quite difficult to be social with people especially if it involves eating because people usually have no idea what gluten is and what celiac is. So sometimes it's taken as some kind of fad diet when I get very ill when I eat products that contain it.
I also find it hard to explain to my partner at times, even though he is quite helpful and very understanding of my chronic illness, how this whole health situation affects my mood and emotions. I can occasionally feel helpless and very frustrated about the situation.

Well thats all I can really think of. I look forward to discussing various topics with you guys and I am sure you guys will be able to help answer some of the questions I have and will have along the way.

 

 

 

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