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Member Since 03 Nov 2012
Offline Last Active Jul 25 2014 06:16 PM

Topics I've Started

Diagnosed With Lyme Disease

25 July 2014 - 07:14 AM

Hi, I just wanted to share with you guys that I have been gluten free for over 2 years now. I finally was able to get a better doctor when I moved to the USA. I told him that I have still been having issues regardless of the change to my diet and medication. We randomly decided to shoot in the dark and test me for Lyme Disease. Turns out I have Lyme Disease!

The reason why I am posting this is because as I researched this I realized that people who had LD were also experincing worse symptoms when they ate gluten, so they went gluten free but they weren't celiac.
It's a bit of a controversial subject in the medical community because no one is sure on how to manage or treat chronic Lyme Disease. Acute, however, is usually easily treated within a month.

I think I may have been affected either 4 years ago or I was infected a decade ago. A certain percentage of people end up with chronic arthritic symptoms, nerve, and brain issues. There's a huge list of symptoms that could and are linked to being infected.

So if you are having issues, you haven't been diagnosed with celiac disease, you are having problems being diagnosed with anything, ask your doctor to run a simple blood test to check for Lyme. Sometimes the blood tests, in the early stages of Lyme come back normal but a chronic case will usually be a positive blood test.

Hope this helps someone out. I have a long road ahead of me now and I don't know if I can or will be cured or if I will be able to eat gluten again. I'm just happy that I have some answers.

Nexium And Other Ppis

06 January 2014 - 08:39 PM

So I am wondering if anyone has experienced the symptoms that I have trying to get off of nexium or has managed to get off of this medication or another PPI.

My problem started over 2 years ago when I had horrible acid reflux it burned my tounge to the point where my tounge was red and soft. I'd cough up stomach acid in the middle of the night a lot, my heart would pound like crazy, I'd have heart palpitations.  I just felt awful.
No over the counter medication like zantac or tums etc would help. This was before I went completely gluten free so the gluten intolerance could have been causing the severe acid reflux.

Anyway, I didn't think much of taking nexium until I tried to go off of it cold turkey and the withdrawal started. After I ate I'd get really tired, dizzy, it was hard to concentrate, and then the nausea would come on. This wouldn't end, I'd feel hungry but nauseated and food wouldn't stop the nausea.

So I went back on it again because it's hard to deal with these symptoms and function properly in my life.

Now that I don't have many important things to do right now I decided to try again but take half of a dose, half was okay, then a quarter but these symptoms came back again except with a throbbing migraine, extreme nausea, sleepiness, it felt like someone was sitting on my chest. But I had no rebound acid problem like most people describe when trying to get off of PPIs.


I tried adding in DGL licorice, lemon and apple cider as recomended by other people, ginger, cutting back on acidic things or things that would irritate my stomach, but still nothing. So I had to go back to half of a pill again because I couldn't get out of bed or off the couch, within a few hours I was feeling normal aside from being really tired which subsided within a day.


It's really frustrating because the more i read up on these medications the more I want to get off of it but I'm physically addicted to it in some way that I haven't read about anywhere else. If I had known how difficult it would be to get off this medication I would have found something else to take instead.

I discussed this with my gastrointestinal doctor who told me outright that stomach acid isn't needed to digest or absorb nutrients. I couldn't believe what she was saying to me as if she was some kind of quack doctor. So I haven't been back to see her, she told me I could take nexium for the rest of my life.

But there are many studies that show that PPIs can make you succeptible to gastrointestinal infections, cause problems with vitamin uptake, weaken your bones etc. It's just not good to go on them for longer then 6 months.

Any advice or stories out there?


Constant Bad Taste In Mouth With Geographic Tounge.

05 August 2013 - 08:10 PM

I constantly have a bad taste in my mouth and I can't relive it with anything. Brushing my teeth helps but only for so long. I am pretty sure it is from acid reflux. When it's really bad I get the patches on my tounge that are like geographical tounge. Any suggestions on how to keep this bad taste to a minimum or how to stop it from happening? Anyone else get this?



Where To Find Or Order Bulk gluten-free Flour In Usa

02 August 2013 - 11:57 AM

So in Canada we have a store called bulk barn and it's amazing for gluten-free flours. It's really cheap too. I'm moving to the USA soon and I've visited there many times but I haven't found any store yet that actually has bulk gluten-free flours to sell. Does anyone know of a store that I can order from or somewhere that sells bulk flour?
I doubt I can bring over any over the border, that's probably a big no no?


Tap Water And Symptoms

02 August 2013 - 11:54 AM

I know there's no gluten in tap water :P But I was curious if anyone else found that tap water irritates their stomach? I've tried getting rid of that problem by putting it through a brita water filter but I still find problems. I often feel a little better with bottled water or properly filtered water. Is this just some kind of silly crazy thing or is it the chlorine in the water that is bothering me. I can smell a very strong chlorinated smell when I boil the water, like I'm standing beside a swimming pool.



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