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nicoleashley

Member Since 04 Nov 2012
Offline Last Active Dec 10 2012 09:45 AM
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Topics I've Started

Canned Tomato Sauce, Diced Tomatoes, Tomato Paste

21 November 2012 - 07:38 PM

ok, this may sound like a stupid question, but do I need to be concerned about any canned tomato sauces, tomato paste, and diced tomato? I am making chili tomorrow and I bought a brand of tomato sauce that says "gluten free", however many of the other sauces list their ingredients (tomatoes, water, spices, etc) and do not seem to have any contaminants. I mean I figure canned green beans and carrots are fine, but tomato sauce when they list 'spices' or something, I just wonder if there is a possibility of it containing gluten. Also the tomato paste I was concerned it might have some thickening agent in it that could be problematic.

User Cp And Subscribed Topics?

14 November 2012 - 06:58 AM

Where is the user control panel to moniter subscribed topics???

Lentil Crackers, Great Price On Amazon

14 November 2012 - 06:57 AM

http://www.amazon.co...=A1IXDUU50AQ4YZ

I bought a box of these lentil crackers at publix and we loved them. But the box was 4.99. On amazon with my prime (free shipping) it comes to 2.99 a box! Thought I would share.

Central Florida (Orlando, Gainsville) Any Good Docs?

06 November 2012 - 09:21 PM

We live in Lake County, florida and I am wondering if anyone knows of a good specialist in this area? Usually Orlando or Gainsville (Shands especially) can offer some good specialist, but it is scarry trying to find a doctor when I don't know anyone who has gone to a specific doctor for this. My husband is pending results of bloodwork for celiacs after he had a biopsy come back from his endoscopy that was suspect for celiac. Over the years physicians have suggest that maybe he should see a rheumatologist based on some of his symptoms that include swelling and pain in the joints of his hands, despite the fact that his rheumatoid factor tests are negative. But there is only one in our area and I just have never taken the time to look further. So his GI doctor is the one investigating his gastrointestinal problems and we will follow up with him of course, but in the meantime if anyone can suggest a good specialist in our area I would really appreciate any input that I can get from those who have experience with this.
Thanks

Afraid Yet Optimistic, For My Husband

04 November 2012 - 04:04 PM

Hello everyone, I am joining this forum in the hope that my husband may finally be close to a diagnosis. He recently got a call from the GI doctor wanting to send him for a blood test to confirm celiacs disease after he had his first colonoscopy/endoscopy last week. The doctor did a biopsy to check for celiac's based on his symtpoms. I am somewhat hopeful that this will finally be an answer after years of tests and medications that don't really help.

But Let me start by giving a little bit of background. My husband and I have been together since we were 17 and married since we were 19. We are both 28, and we have two amazing children. I am a registered nurse and have been for 7 years now and I finally convinced my husband to go to my gastroenterologist after years of dealing with many seemingly unrelated heatlh issues that he has had since I have known him. His hands swell and his joints ache, he gets headaches and sinus infections, his joints ache worse than an old mans. He has struggled with his weight and overeating since he was a child. and worst of all is his chronic GI issues. He has heartburn, reflux, abdominal cramping and alternating constipation and diarrhea. Sometimes his stomach pain is so bad it wakes him in the night and he will spend the night up on the toilet, other times when we try to go out or even grocery shopping all he wants to do is go home because of his stomach pain and constant need to go.

The first doctor I took him to when we were 19 did some bloodwork including a sedrate and rheumatoid factor and some xrays of the joints that were bothering him. (hands, shoulder, neck, knees). He also did an MRI for his headaches. Everything came back normal and that doctor wanted to prescribe antidepressants. Me being in nursing school was very hesitant for him to take antidepressants. I said he was not depressed, he was in pain. At that time I really didn't realize the full impact of his GI symptoms as we had only lived together for about a year and I believe in the beginning he kept a lot of that to himself. We refused the antidepressants because of the potential side effects, especially since at that time he already had a low sex drive, which I didn't realize till much later was mostly related to his stomach pains. So that doctor put him on an antiinflammatory called diclofenac for his joint pain. since we explained that ibuprofen and aleive were not working very well.

The diclofenac helped and his mood improved significantly. But his GI symptoms got worse. So we went to a different doctor who did a whole new round of blood tests and switched him to celebrex and also added omeprazole and allegra for his sinuses. After a few years we switched doctors a few times who would run the same slew of blood tests and keep him on the same medications. Sinus and allergy medicine, omeprazole for reflux, and the celebrex for joint pain. He has been tested for rheumatoid arthritis more times than I can remember.

Our most recent physician that I still go to, well he added welchol to help control the diarrhea. It is a cholesterol medication but apparently it binds with biliruben and causes some degree of constipation and that physician thought that he might have a gallbladder that produces too much bile and causes some of his GI symptoms. He said the joint pain was probably some sort of juvenile osteoarthritis but still has ran sedrates and rheumatoid factor tests on occasion. He also added st.johns wort to help with some of his moodiness. All of these things helped a LITTLE but not a LOT.

The last visit I went with my husband I was practically in tears. I told the doctor there HAD to be something more significant going on. Something systemic to cause someone so young to have so many problems. My husband had reported what he thought to be mucous in his stool on occasion which I told the doctor made me worry that he could have something like chrones or ulcerative colitis. He agreed with me that inflammatory bowl could be at the root of his problems and agreed with my request for a GI consult to my gastroenterologist. He also mentioned that the reason he didn't diagnose inflammatory bowl previously was because my husabnd never mentioned mucous in the stool.

Sorry to be so longwinded, but I just want to relate to you why I actually HOPE that his blood test for celiac comes back positive. So after his colonoscopy and endoscopy the GI doc came out and said that my husbands colon looks prefect, no signs of inflammatory bowl, chrones, colitis, cancer, not even any polyps. GREAT NEWS! He did have a small hiatal hernia, some mild GERD, and duodenitis. He wants him to continue taking his omeprazole and added pepcid prn. He said most likely his symptoms are from irritable bowl syndrome and reccomended him to take metamucil capsules twice a day to help regulate his stool and avoid carbonated beverages, spicy food, and dairy products. At the end of this he said, oh by the way, I am sending a biopsy for celiacs disease because his symptoms sound like and we will let you know. He said this offhand and I stopped him and asked, aren't celiacs underweight and malnourished? That's what He responded that more recent evidence shows celiacs can have a much more broad range of presentations.

So anyway I kind of put it out of my head until the doctors office called and said they wanted to do the blood test to confirm celiac's based on the biopsy. Now I have been researching furiously and I realize all of the problems, including his being overweight are all related and can potentially be a result of this! I am anxious and relieved at the same time. Could a gluten free diet really alleviate all of these symptoms? Could they help him lose weight and stop overeating, could they help decrease his joint pain, headaches, and sinus problems? Most of all put a stop to the endless abdominal pain and diarrhea that he suffers after eating? He is getting the bloodwork done in the morning and I made sure all of his meals today include bread so that if gluten is the problem then it will show up. He has also been symptomatic all weekend. (Sometimes he can go a few days to weeks without many symptoms).
Thanks for listening, and I am sorry for being so long winded. I hope we are close to an answer.