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scap

Member Since 07 Nov 2012
Offline Last Active Nov 08 2012 07:46 AM
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Posts I've Made

In Topic: Need Advice About Conflicting Test Results Please...

07 November 2012 - 12:06 PM

My father had celiac disease. I am 52 yrs. old and was having some gastro problems some years ago, mentioned that to the gastro doctor when I went for my 5 year check up for my colonoscopy and she suggested doing an endoscopy. The results of the endoscopy were "inconconclusive" so I continued my regular diet. About five years ago, I decided to go gluten free to see if it would help my continued gastro issues and it did. I felt a million times better!

So I've been gluten-free for about 5 years but have developed gastro issues once again. My new gastroenterologist did a Promethius, Comprehensive Celiac Evaluation. The nurse called to say my results were "negative." I just got the copy of my lab results in the mail today, and they show that "serological markers for celiac not detected" and that "celiac disease is unlikely if patient is on a gluten-containing diet and is IgA sufficient." I had asked the doctor before the test if the results would be valid since I have been gluten-free for 5 years and he said "yes." Obviously he was wrong according to the lab report.

Also, the report shows that a celiac gene was detected - DQ2.5 (HLA DQA1*05:DQB1*0201) which is a category 4, meaning my risk is 10X, High.

My doctor thinks I have IBS and not celiac and that the reason I felt better after going gluten-free five years ago was because a gluten-free diet "is more healthy." I am just wondering what to make of these test results. My "gut" feeling (pun intended) tells me that I am indeed either gluten intolerant or celiac and that the diet makes sense to continue, and that my lab results are meaningless because I have been gluten-free for so long. But I am at a loss to explain why my gastro symptoms have come back in full force I don't think I have any gluten sneaking into my diet but I did accidentally eat some gluten containing food just a few days before the sudden onset of these symptoms. Would it be normal to have a reaction for 3 months after accidental gluten consumption?