Jump to content

Follow Us:  Twitter Facebook RSS Feed            

   arrowShare this page:

   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac.com Sponsor:                                    


Member Since 09 Nov 2012
Offline Last Active Dec 13 2014 03:30 PM

Posts I've Made

In Topic: How To Stop The Immune Attack?

13 December 2014 - 11:43 AM

I can say avoidance is the best method, eg eat at home to have better control of what is in your food. It took me awhile to do that but in my town we have a gluten free allergen free restaurant I <3. ! but after having to retool my diet getting rid of other grains I can't really go there. But as of once the problematic food item has been eaten, I go for kombucha for probiotics and avoid foods that could cross react.. I tend to eat lighter foods and grab as many zzzz's I can. plus peppermint tea helps chill me out. I wish there was a way to soften and shake it immediately, but alas nein, sadly.


I am determined to find an answer. I shall keep looking. I've contacted several organizations and will be getting in touch with Dr. Alessio Fasano's office on monday to see if they know of anything. I know about his medication for blocking the effects of zonulin but I'm not about to go on medication for the rest of my life. I need something that can be taken on an as-needed basis when accidental gluten exposure occures.

In Topic: Need Help / Advice - Think I'm Celiac

19 September 2014 - 03:04 PM

I have been eating as normal, to make sure I don't mess the test up, but it's hard. I'm also keeping a diary of what I eat and the symptoms...


But I am suffering for it right now. I ate before some things on a Pitta Bread.


30 minutes or less later:


Stomach Cramp, Dizzyness, Hot Flashes, Fatigue (Nearly fell asleep), Headache, Brain Fog, Bloating and then followed by Loose Stools, most stopped after 2 hours, except for the headache and stomach cramps.


The hot flashes are so strong though, it literally feels like lava coming from my chest to the top of my head, it's quite bizzare.


Stomach ache/cramps is still there though, I have had that all day.


So I have a month of this at least until we do more bloods.


You need to have these tests done:


Endomysial Antibody
Tissue Transglutaminase Antibody (tTG)
Immunoglobulin A


I recommend that you print that out and take it to your nurse/doctor/whoever and tell them that is what you want done. If they refuse or hem-haw around as they already have done, get another doctor. Those are the tests you need to answer your question of whether or not you have Celiac, and I think you do have it. Let us know what happens.

In Topic: Silent Celiac Disease With No Antibodies?

19 September 2014 - 02:58 PM

My twin sister was diagnosed with a severe form of celiac disease so I got tested an year ago showing no symptoms at all!My antibodies were totally negative (contrary to my sis who showed highly elevated antibodies) but my endoscopy showed patchy villous atrophy!I was told to go gluten free so I did for 7 months, nothing changed in my health so now once in a while I eat gluten (even a beer) and I show no problem. Is it possible I was misdiagnosed?Can a silent celiac become more sensitive on a strict gluten free diet?


What do you mean by "patchy" exactly?

In Topic: I Keep Getting Glutened! Beware Mission Tortillas!

13 September 2014 - 08:31 AM

I just ate the mexican casserole again with those same tortillas and I'm feeling fatigued, foggy brained, tired, no motivation to do anything, and a headache might be coming on as well...I'll report back later. Maybe some of you are right: maybe its the corn. I don't know...I started a food diary same day I started this thread though.

In Topic: I Keep Getting Glutened! Beware Mission Tortillas!

05 September 2014 - 11:52 AM

The problem is, I only have 1-3 days of feeling good, followed by 2-3 days of bad. This happens over and over and over and over. Foggy brain, no energy, can't think, can't focus, etc. And we can't seem to track down what causes it.


It doesn't take me a couple of weeks to start feeling better after an episode. It will take 1-3 days to feel better. But then it hits me again...