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Member Since 22 Jan 2004
Offline Last Active Oct 26 2004 02:19 PM

Posts I've Made

In Topic: Hair Loss?

15 March 2004 - 02:54 PM

Oh, thanks - just be patient, OK - here's hoping my hair grows back nicely. I suppose hair growing is a slow process.

Btw, I've been tested for just about everything possible, all blood tests have been clear - thyroid, celiac disease, diabetes, hormones, everything!

In Topic: Wierd Symptoms - Celiac?

22 January 2004 - 08:52 AM

Sadly, don't think I can do the Enterolab tests as I'm from the UK. There doesn't seem to be any similar test over here.

In Topic: Wierd Symptoms - Celiac?

22 January 2004 - 08:44 AM

Actually, I'm from the UK and celiac was one of the first things my doctor mentioned (especially as I have Irish grandparents). The rate of celiac can be as high as 1/80 in some parts of Ireland. It's just a shame I was eating a low gluten but not gluten-free diet already when I was first tested.

Every time I see him now to say still no better he queries celiac again and then looks at my negative tests. Since my last visit I did a gluten-free diet for 6 weeks (total relief and cure from symptoms - felt better than I EVER have before). Now I'm back eating gluten again and I'm getting sicker and sicker.

I'm worried about struggling now to get more tests and a definite diagnosis, especially given those earlier tests and the fact that there can be false negative results. I know I feel better without gluten, but really need to know how strict I need to be on the gluten-free diet - is is celiac or not - to avoid intestinal damage.

My symptoms have also been slowly progressing in severity over a long period of years (I'm now 30) and I'm worried that evidence of celiac (via biopsy) may not have fully developed yet (will be ruled out by negative tests) and then I go on to develop it.

Worry, worry, worry!!!
Thanks for responding.