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confused123

Member Since 12 Nov 2012
Offline Last Active Jan 18 2013 05:56 AM
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Topics I've Started

Biopsy Results Help Please

17 December 2012 - 01:46 PM

Hi everybody!

A quick recap:

Negative Ttg IGA: Result <1 (Range: Positive >4)
Normal Immunoglobulin A 179 (Range: 81-463)

Had an endoscopy done on 11/30 and doc wanted to see me back for results.

Here's exactly what's written on the report:

SECOND PART OF DUODENUM, BIOPSY:
FOCAL MILD SURFACE INTRAEPITHELIAL LYMPHOCYTOSIS

COMMENT: No evidence of celiac sprue is present. The biopsy shows small intestinal mucosa which has a normal villous architecture. Focally, however, there is a minimal increase in the number of intraepithelial lymphocytes. No Giardia organisms are identified on the H&E stained section. Normal villous architecture with increased numbers of intraepithelial lymphocytes can be seen in a wide variety of clinical settings. The differential diagnosis includes partially treated-latent sprue, first degree relatives of patients with gluten sensitivity, dermatitis herpetiformis, bacterial overgrowth, Helicobacter P gastritis, hypersensitivity to non-gluten food products, lymphocytic-collagenous colitis, Crohn's disease. NSAID use as well as a variety of autoimmune disorders.

STOMACH BIOPSY: Normal no evidency of H Pylori. No evidence of dysplasia or malignancy. (I summarized this part but everything is normal except for "nervous gastritis".)

6 samples from stomach and 6 from duodenum were taken.

Doctor said the duodenal results can be seen in Celiac but since my bloodwork was negative he is ruling it out. He wants to treat me with a harsh antibiotic for Giarda to see if I feel better. (Biopsy result didn't catch any Giarda). He also said this doesn't look like Chron's.

We are waiting till January to start antibiotic since it is nasty and so I can enjoy the Holidays.

I asked him why is he ruling out Celiac if bloods can be false negative and he said not when all 4 tests were negative. I was like "Ummm, you only did 2!!!".

Had more blood drawn today for the missing tests which are the Endomesyal one and the Gliadin one. Sorry, had to turn in the order and don't remember the exact names.

Forgot to mention other than Gastro symptoms (bloating, rumbling stomach, pain, fluffy stools) I have eroding teeth and joint pain. I also think my energy levels have decreased.

Thoughts please???

I am desperate! :D

Non-Itchy Rash Celiac/gluten Related?

27 November 2012 - 03:22 PM

Firstly, I apologize for posting a lot lately while I try to figure out what's going on!

My question is,

Does anyone here experiences a non-itchy rash related to their gluten ingestion?

This year on the onset of my symptoms I noticed a bumpy rash on my buttocks (both sides). I thought it was acne (I know, gross!) but it doesn't seem to be that. It starts as flat red tiny bumps but then some grow and become raised. Only thing is that it doesn't itch! I know DH is supposed to itch insanely so I was wondering if this is something related to gluten. I know it can be tons of different things but due to its location I am kind of embarrassed to go to the derm! :blink:

Thanks so much!

Going In For Endo On Friday, Questions

27 November 2012 - 08:26 AM

Hi everyone,

Going in for endo this Friday after negative bloods (TTg Iga and Immunoglobulin A).

I know the doc should've ordered more tests but I am thinking the endo is a good next step. What do you guys think? Of course I am worried it comes back negative not giving me answers but it also assures me that other issues can be ruled out. Is more blood testing necessary to completely rule out celiac?

Also, I am freaking out about the procedure itself but trying to stay calm. The anesthesia concerns me although the doc said it is jus a deep relaxer.

Any thoughts and words of encouragement are appreciated!!! :D

Can Eating Nuts Make Your Symptoms Worse?

26 November 2012 - 01:26 PM

Hello everybody,

I've posted here before about a negative blood test (Doc just tested immunoglobulin A and Ttg IGA) but I have several "celiac" symptoms. I go for an endo on Friday but have a quick question.

Has anyone noticed eating nuts aggravating your symptoms? My symptoms were mild this Thanksgiving Holiday but started to flare-up this morning. Then I had the bright idea of snacking some almonds this afternoon and my stomach totally disagreed! I am thinking they are too harsh on your system if you are not completely gluten healed???

Any thoughts? Thank you so much!

Going Back To Gi, Negative Blood Results, Is This It?

17 November 2012 - 12:18 PM

Here are my test results

TISSUE TRANSGLUTAMINASE AB, IGA < 1 (Range: <4 no antibody detected)

IMMUNOGLOBULIN A 179 (Range: 81-463)

B-12 and folate were normal. Ferritin 37 (Range was 10-154)

Still leg cramps, eroding teeth and tummy rumbling, explosions, and fluffy stools (undigested food, not D).

Are more blood tests needed? I am worried that if an endoscopy is done it will show no damage.

Ideas?