And as an update to the fatigue issues- they *are* actually getting better. It's at least partially contingent on stress, sleep, and diet, but *I'm* getting more able to recognize things like "Oh hey, I feel kind of down and moody all of a sudden because it's 11pm and I need to start heading home and get some sleep." (Knowing what "hungry" actually feels like may come at *some* point, lol, though it's still usually "I'm tired. Is this a sleep or a food thing?")
Also, they're getting *better* and less frequent but are not totally gone, and I also sometimes do still get dizzy spells.
That said, I don't want to blow off the rather alarming symptoms I was having as recently as May just because they are right now getting better (especially since I only get the one physical per year). If it really was just and overall health issue, that's fine and good, but I'd like to have the labwork done to more firmly be certain. I had one medical problem screw my life up for 26 years, and I'm still kind of amazed by how much different I feel physically *and* mentally now that I'm gluten-free. I don't want to miss another thing that I might be able to fix and feel even better.
I generally think food trends/fad diets are ridiculous and kind of irritating, but I'll admit, with this, I'm kind of glad that going gluten-free is "trendy" now... it means there's more products out there that I can eat!
I've noticed that this seems to be a common theme, but it also may just seem more noteworthy to post about a more severe reaction to gluten after going gluten-free than to post about an unpleasant but not especially spectacular reaction.
Starting this thread in the hopes of pulling for the other end of the sample and maybe getting a more balanced perspective.
And yes, I am aware that even if you don't have a huge reaction, with celiac it is not OK to eat gluten, and it *will* damage you even if you don't have an immediate, punishing reaction. From the sound of it, accidental gluten ingestion happens to most of us at some point, though, so it strikes me as relevant information even if fully committed to being gluten-free.
I have tried to find info on this and have somehow failed in my endeavor, so I'm hoping someone can link me to something.
My question is this: Which of the symptoms of celiac are caused directly by reaction to gluten, vs. which are caused by secondary factors resulting from long-term gluten damage (ex. having a damaged digestive system, malabsorption/vit deficiencies/etc.).
It seems like some of this is known but some is not, and like there's also overlap (quite a bit, actually), and there are certainly outside factors which are commonly associated that end up confounding the question further, so I know this isn't as simple a question as it seems. I am curious about what the current understanding is, though.