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Member Since 18 Nov 2012
Offline Last Active Jun 29 2015 01:11 PM

Posts I've Made

In Topic: What Should I Do After Having Been Glutened?

24 November 2012 - 11:37 AM

I feel your pain - literally!
For the past 6 months I have not knowingly ingested gluten, but have on occasion had all the old symptoms in spades. This usually happens after eating at a friend's home, even when everything was prepared gluten-free. I feel it must be coming from cross-contamination of pots, pans, utensils, work surfaces, etc.
We ate our Thanksgiving meal with friends at their home; I had no pumpkin or pecan pie because the friend who brought them used wheat flour but made a fruit dessert just for me - sigh. That night I was sick; not over the top but had cramping and spent a good deal of time in the bathroom. I felt like a real martyr; if I was going to be sick anyway, maybe I should have eaten the pie! Would I have been sicker??

In Topic: Are Periodic Blood Tests Warranted?

24 November 2012 - 11:25 AM

Not sure why they would say that. This is from Univ of Chicago:


How often should follow-up testing occur?

New celiacs should receive follow-up testing twice in the first year after their diagnosis. The first appointment should occur three to six months after the diagnosis, and the second should occur after 1 year on a gluten-free diet. After that, a celiac should receive follow-up testing on a yearly basis. We recommend checking both tTG and DGP (Deamidated gliadin peptides) at each screening.

Thank you. This is valuable information and supports my "need to know".

In Topic: Are Periodic Blood Tests Warranted?

24 November 2012 - 11:22 AM

I always would like a way to mark progress. I just got my first report on vitamin absorption. I sure would like to repeat that down the road. Feeling better is good, but I like to measure progress somehow!


Thanks, Diana. I like to measure progress as well!

In Topic: Are Periodic Blood Tests Warranted?

24 November 2012 - 11:21 AM

This is a case where numbers don't mean anything, symptom relief does. Your numbers should be going down as long as you're on a strict gluten free diet. If you're feeling better then that's all that really matters.

The numbers you should be worried about are for vitamins and minerals. Make sure your numbers for b12, calcium, folate, iron and D are all in good standing.

Thanks for your insight. I am overall feeling better, but would like to be able to track my progress through definable data.

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