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Mayasmum

Member Since 19 Nov 2012
Offline Last Active Jan 13 2014 09:45 AM
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Posts I've Made

In Topic: Public Schools Shrugs Celiac

09 January 2014 - 05:14 PM

I would notify the head, this is unacceptable from them.

My daughter's school has been amazing - it helps that her nurse and teacher are on board and they call me if something is beng offered that is questionable.

 

They were fully informed about it - they have no excuse. I would call for a interview with the head.


In Topic: Venting About Lazy In-Laws

08 January 2014 - 10:49 AM

Same sort of thing going on here.

It annoys me so much tbh that grown adults cannot accomodate a child. Really - I would go out of my way for others if they had an allergy. Some people also think it is a "fad" uh no - it's not a fad. We have missed out on a ton of stuff because it really was not safe for her to eat at certain places as they would not accomodate celiac clients. And for relatives to do that as well - it stinks.


In Topic: Help Interpreting Labs

05 January 2014 - 09:28 PM

If his IgA came back as low/deficient, then the celiac test cannot be trusted. IMHO I would keep him gluten-free.  With the side effects - they can vary from person to person, and it can be very hard for a little person to tell us what is going on. If you can do the stool test, that will tell you a lot about his gut, and that will help with some of the puzzle.

Good luck! We take packed lunches in for my daughter - maybe the preschool will let you do that?


In Topic: Help Interpreting Labs

05 January 2014 - 09:23 AM

Quick question - how much gluten was your son ingesting before taking the test?


In Topic: Help Interpreting Labs

05 January 2014 - 09:17 AM

TBH, I decided that even though we had a negative response on the celiac test, we decided not to let the others have gluten at all, especially as a sibling has it. It may be worth looking at a comprehensive stool sample test as well - we did ours through Great Plains.

Our doctor also advised them going gluten-free as the low IgA means they could be celiac. Good luck with your choice mama.

I wish we lived in Italy - it's law there that gluten free food be available in schools, hospitals, etc.