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Member Since 21 Nov 2012
Offline Last Active May 31 2014 12:37 PM

Topics I've Started

14Month Update! Repeat Biopsy Results

23 February 2014 - 11:24 AM

Diagnosed 14 months ago Marsh 3b, scalloped duodenum, hiatus hernia.
Subsequent intolerances to MANY foods.
Severe anaemia, low vit d, major hairloss, severe adrenal fatigue, melasma, night sweats, neuropathy, depression, etc!
Repeat biopsy shows 'essentially NORMAL '
Not sure what they mean by essentially but normal sounds good to me.
I came back on to share this, for those of you out there that worry, fret, get anxious, cry, wonder when it's going to get better... It does happen. I was/am one of those that did all that worrying. I still have a way to go in regaining my former self. If indeed I ever will!! But... Healing DOES happen, it's happening for me on a diet that's severely restricted!
Keep at it! :-) x


23 February 2014 - 11:14 AM

Any advice regarding vaccinations... Celiac UK recommends vaccinations for flu, meningitis and a few others! I'm not a great fan of injecting myself with foreign rubbish but I have had a lot of colds/infections this year...
Apparently vaccinations are imperative if your hyposplenic. How would you know if your hyposplenic?!!
Any thoughts on vaccinations for celiacs welcome thank you!


07 September 2013 - 05:56 AM

Ok... Just read this...

Anyone know if this is for real??!! Really? Grown on rye and wheat? I haven't had many mushrooms as my diet has been so limited because of allergies.. But I was just about to re introduce this weekend! The idea of consuming ANY gluten puts me off completely, I'm gutted, I was so excited about eating some shrooms tonight!
Anyone else eat or not eat shrooms? Be interested in anyone's opinions. :)

Diabetes And Celiac Connections... Any Info?

02 September 2013 - 02:56 PM

Trusted friends...!
I'm posting for a friend who has a child of 6 years recently diagnosed with diabetes type 1. She knows of the link between celiac and diabetes, but I'm finding it hard to find any info online for her... She desperately wants to look at every possibility to keep him healthy, and he has recently displayed some celiac type symptoms. The docs here in uk won't acknowledge the link easily. So am trying to help her. But I have no experience or links to show her. (Am more of an expert in celiac and allergy!!)
Anyone have any useful info or links, would really appreciate it... As always, many thanks

I'm Getting Fat

19 August 2013 - 06:12 AM

My trusted friends!
I'm getting fat! Ok, I eat very basic food, fruit and veg, rice, an egg every 2/3 days...no dairy except butter... My downfalls are handmade crisps and the odd glass of wine at weekends...Otherwise I'm very pure!!
So, since being off gluten I have gained a whopping 17pounds? How why! My thyroid tested ok (big lab ranges here in uk).
Ok, so I'd like to cut down and restrict my calories but I'm worried about nutrition. I'm already worried that I don't get enough vits and minerals like selenium, calcium, b's, zinc etc (according to a nutrition counter app I only accrue between 50-75% of the RDA)... Obviously being celiac I hesitate to cut back. But I actually feel horrible, I can't get into my clothes, it's impairing my running and exercise. And I look horrible.
Does anyone know any thing about rda's and whether we should all be hitting them everyday? I read conflicting data, I know I prob don't absorb what I should as It is so worry about calorie counting now!!
Anyone else have trouble with flab?!! :)