designerstubble

I've been reading up on Refractory Sprue (mainly because my diarrhea hasn't improved), and found so much info on Refractory. But some of it contradicts and I was wondering where you get the facts from? Any good websites known?

 

Is it really as much as 10% of celiacs have Refractory Sprue? And is it true that after 10 years gluten-free your chances of developing RS go down?

 

Ok, I am just generally interested too, purely because I don't know what info to trust, I know it's every Celiacs worst nightmare. Including me! But just want the facts!

 

What are the symptoms?? I know diarrhea is one. 

 

Any pointers for good articles? Knowledge is power!

 

Many thanks

Ugh. Anybody still have loose poop 7 months gluten-free??? Sorry, totally gross etc but I don't know what to do. No cc. I have many food issues and mostly exist on fruit veg and rice. I eat rice to try and bulk me up... (It's not working) still waiting to see a GI specialist (still had no follow here in UK, docs been crap etc)...
My poop is very loose and often looks 'undigested'... I had a pee test (arranged by myself) that showed severe gastro int inflammation, liver not working properly, and adrenal 'collapse'. And a few defiencies (no big surprise)... Haven't had the energy to research it all yet but wondered if any of it is linked (apart from inflammation) to my loose poop. I haven't had a normal nice 'movement' for months.
Wwwwwwwhhhhyyyy??!!
Anyone think that it could be just because of my diet? Too much fibre with nothing to bind it up?
Love to hear from anyone else with same issues (sorry, I know, bit gross!)



(Thanks for any replies. Apologies if I don't respond immediately, I have terrible connection probs at moment, sometimes I manage to log in for 5 mins)

Pressure hives anyone?? Has a few minor incidents the last 2 months around my wrists and inner forearm when carrying shopping... And the other day from my sons head laying on me... I just thought it was dust or something... But today... Welts on inner arm from carrying a basket around the supermarket? I looked it up and pressure hives seems to fit the bill.
Is this auto immune does anyone know?? Is it something I should worry about?? I'm so sick if it. I've heard about people breaking out after exercise??? This is crazy. One thing after another.
Do hives go away? Is it my immune system being over reactive or this another disease.

When does this sh*t stop. I'd been having a good day up until that. Im feeling so despondent, I can't work out one thing before starting another.

Hi...

 

Any ideas... I have been on my strict diet a while now, all going ok, was feeling... dare i say it... good! But slowly, my BM are not good, undigested food EVERY time, VERY loose, not formed at all. And  I have a pain in my top right corner of my abdomen... right by the lower rib. Somethime achey, sometimes pinchy.

 

I dont want to worry (I'm having enough issues with my little boy at the moment to keep my stress levels high), anyone know anything... I havent been taking my probios for about a month as I cant find a gluten-free, dairy free, soya free, and CORN free one here in UK...

 

Are probiotics a must? Do they really help? Could it be this? I thought probiotics were only useful in the large colon?

Is it a life long thing?

 

Could this be something sinister, I'm not really up for visiting my doctor, as I am about to change doctors again.

I need some self help tips!

 

Thank you thank you thank you!

Hello everyone

 

It's me... again!

Anyone out there know about kid's blood tests?

I'm still waiting for my son's celiac panel to come back but in the mean time he's had his FBC done.

 

Most of it is normal...

except his lymphocytes are REALLY down 2.4 (range 5.5-8-5)

and eosinophils are up 0.7 (range 0.0-0.4)

 

My doctor said its all fine, not to worry, he doesn't want any further investigation.

 

I'm worried. Can't help it. Anyone???

 

I've researched a bit, seems as the auto immunes can play a part in lowered lymphocytes, (as well as lymphatic/blood cancers, of which at this moment i am ignoring due to not wanting to panic!)

 

(My son is active, and energetic but does suffer from lots of colds, viruses, things hit him bad... he very often has dry cracked lips or ulcers. And occasionally complains of feeling sick in the morning after getting up, or tummy ache through the day.... not every day, just here and there.)

 

Would really appreciate some help, I know my useless doctor won't help, I know I'm on my own... except for you guys! And I'm now worried about my angel

 

Help. pleeeeaase.