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Member Since 21 Nov 2012
Offline Last Active Dec 04 2012 04:39 PM

Posts I've Made

In Topic: Could Celiac Disease And Eosiniphilic Esophagitis Be Connected?

23 November 2012 - 08:25 AM

Yes there is a proven link between Celiac and Eosinophilic Esophagitus. (if I remember right JAMA October '12 or even as early as '11) It has lead to the reccomondation that all new cases of EE be screened for Celiac.

My daughter was diagnosed with "probable" Celiac at 17 months old and EE when she was 6 years old. (Her EE diagnosing scope was done when she was gluten free for almost 5 years.)

It is consistant to be negative on allergy tests, as the reaction isn't really a true "allergy".

The way the elimination diet went in her case was to keep her gluten free and eliminate the top 8 usual suspects and peas. She had a dramatic improvement. She was scoped again (in January) to show complete healing in the esophagus. Then we tried to add back some of the foods on a challenge. She needs to avoid gluten, egg, fish, shellfish, and peas. We have also noted a seasonal allergy connection. late summer early fall triggers the reactions and after the frost freeze of winter the symptoms calm down.

Wow! Thanks Mommida! My GI basically diagnosed me and prescribed meds so I'm doing the research on EE on my own.. I am glad I found this forum. I don't feel like this is "all in my head" anymore...

In Topic: Could Celiac Disease And Eosiniphilic Esophagitis Be Connected?

23 November 2012 - 08:14 AM

Thanks to everyone for the advice! I'm still feeling out everything. I try to be informed but short of self-diagnosis but then, you know your body and it's triggers, right? I have a follow up with my GI next week and now that I know more about EE than I did when she called me with the diagnosis, I have a ton of questions for moving forward... I'd much rather eliminate bad foods and find healthier options than continually use a corticosteroid... My GI is a "treat it with drugs first" kind of gal...

Any advice for making it through the holidays? Do you have recipes for your favorite foods? I don't now how much more rice and mashed potatoes I can stomach... lol

Thanks Again,

Michelle Suzette

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