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Member Since 25 Nov 2012
Offline Last Active Jan 12 2013 06:05 AM

Topics I've Started

Help With Cyrex Test Results

11 January 2013 - 07:18 PM

Hello! I got tested through my doctor and was told I did not have a problem. Then, I decided to go through Cyrex Labs because I really felt something was wrong....here are my results.


I also got tested for Cross Reactive foods and this is what I discovered. I was kind of shocked to say the least!


I really hope the links work because I'm dying to know if this means I actually have Celiac or if it is just a non-celiac sensitivity. Any help would be appreciated! Thanks!

Looking For A Doctor In Northern,va

15 December 2012 - 10:14 PM

Hello! I'm looking fr a good doctor in Northern, Va. I live in Woodbridge, but would be willing to drive up around an hours distance if it means I get to be seen by a doctor who actually knows what he's talking about. Thanks!!

Fading Fast. And I'm Just Getting Started :(

03 December 2012 - 05:46 PM

Please help! I was just diagnosed a few weeks ago and officially started my gluten free diet about 2 weeks ago. I noticed a difference immediately, which was very comforting. I've been extremely careful to avoid all sources of gluten and am trying my best to avoid cross contamination. Im just getting used to all of the ingredients i need to avoid to remain gluten free and its taken a lot of work and getting used to. I thought I was finally getting the hang of it, but I just discovered that I also have a reaction to corn! I started looking up ingredients that contain corn and the list is overwhelming! I am getting very discouraged as I didn't even know anything about celiac 2 months ago. I was really looking forward to my DH, bowel issues, anxiety, insomnia, irritability, brain fog, and dizziness going away for good but now I feel like I'm climbing Everest! Do I have to avoid all corn products in order for all of my symptoms to clear up? If so....what can I eat?!? It seems as though there is gluten or corn in everything! This is a lot to handle and my doctors aren't being much help. I feel like I'm alone in this!

Hi I'm New Here!

25 November 2012 - 11:40 AM

Hello! I'm so glad to have found this site...I swear I'm learning more from you guys than I do from my doctor! I guess I'll start by sharing my story. I'm 24 years old and was diagnosed with autoimmune hypothyroidism when I was 16. After I started taking thyroid medicine, I started to feel better and didn't really try to understand my condition much further than the medication (I was a junior in high school and it all kind of went over my head). A year later I started to have some rectal bleeding. The doctors told me I was fine. 2 years later I started to suffer from a terrible itchy rash on my scalp, back of my neck, buttocks, back and arms. The doctors have prescribed topical steroid creams and most of them help but don't get rid of it completely. Around the same time I started having anxiety problems. I had several panic attacks but never wanted to go on medication. i also started to have insomnia. The doctors thought my thyroid levels were off but I have them checked every 4 months or so and they are always normal or even low. In fact, Ive had dosage increases. About 2 years ago I started sleeping A LOT. I was always exhausted and would go to sleep at 7pm wake up at 7am and still be tired all day. After a few months of this cycle my insomnia kicked in. My body was still exhausted but I could not fall asleep (probably due to anxiety as well). I also started having stomach problems. I seemed to have to use the bathroom after every meal. Fast forward to present day and I'm still experiencing fatigue, insomnia, anxiety, skin rash, rectal bleeding (despite treating for 'hemhorroids' on multiple occasions), stomach problems and the list goes on really. I was finally alerted to celiac disease and it seemed that everything started to fall into place! I went to my endocrinologist and she ordered a celiac blood test along with several other autoimmune disorder blood tests. However, my bloodwork was all normal. The celiac test results were negative. I have Kaiser Permanente and I'm not entirely sure which celiac antibody tests they use but I do know that my doctor never contacted me I'm sure because everything was normal. But I'm almost positive my skin rash is Dermatitis Herpetiformis. Should I push for the skin biopsy and even the small intestine biopsy? Or should I just go gluten free and see if it helps me feel better?

Thanks for all your help!

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