Madagascar

so curious that your antibodies were lower before you went gluten-free. i don't have any idea how to explain that.

re your nasal spray - i developed angioedema from Becanase, an allergy nasal spray. evil stuff for my body. my hands, feet and tongue would swell up horribly in a "rare" side effect to it. i thought it was going to kill me. apparently i was reacting to a preservative in it. Five years of suffering with that off and on until i finally connected the dots and saw it pointed to the Becanase. Stopped using it and haven't had it since - probably 5 years now without symptoms. Glad you were able to go off of yours.

i agree - it sounds like this could be something serious. i don't know how turning blue could be anything other than circulation-related, somehow.  Have you done the symptom-checker on Webmd?  It's pretty good.  It came up with a few possibilities for you, solely on the skin discoloration symptom.  the one i wondered about is Thrombocytopenia, bleeding under the skin.  That can be caused by drug side effects.

You might look there and see what you think.

i don't know the answer to your question, but am wondering if you were also checked for antibodies.

the whole thing of testing is very interesting. through an error, my blood sample was sent to Peace Health labs first, then the exact same blood sample was sent to Prometheus. The genetic testing was only through Prometheus. The antibodies were done by both - and the results do not match.

for example, the tTG test through Prometheus was 1.3u/ml, with a reference range of <10.3 U/ml. that would say a pretty clear negative.

the tTG test through Peace Health was 29, with <20 negative, 20-30 weak positive and >30 positive. That's so close to a definite positive, it would say positive.

how to explain it? it was the exact same blood draw sent to both places. I think it just says the testing is not the whole story. i'd go with your gut (little pun) and if you improve on a gluten-free diet, just stick with it.

yes, thanks for clarifying that. i meant there might be other food intolerances, or something else could be going on. i just read a study this week about people who hadn't completely cleared up with a gluten-free diet.

ok, here's the study - they can say it better and more accurately than me trying to tell about it. http://www.ncbi.nlm....les/PMC3319961/

anxiety seems to be strongly connected to celiac disease . . . wouldn't it be nice if yours went away as well? here's an interesting link, a powerpoint about the links to neurological effects of gluten in a sensitive person: http://www.mybrainhe..._Feb_8_2011.pdf

kinda nice to know there's a reason for how you feel. the link above includes links to the medical studies behind their information.