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Member Since 01 Dec 2012
Offline Last Active Mar 24 2015 12:18 PM

Posts I've Made

In Topic: Iv Nutritional Therapy

24 March 2015 - 09:01 AM

Thank you for your response. I received iv iron in '09 but there was more of an effort to increase my hemoglobin & iron quickly rather than diagnose the cause. Anywho, it's a good thing you replied because I just realized I bought magnesium instead of iron a few weeks ago. I should be taking this iron twice a day, not magnesium. Maybe that's why I'm so tired!

I don't think I would have caught this had you not mentioned the iron. Thank you!

In Topic: Iv Nutritional Therapy

23 March 2015 - 10:48 AM

What exact IV nutritional therapy do they have you on?


It's a bag of C, Bs, minerals & she added amino acids to the first bag, not sure of the second. I'm taking oral D at 10,000 IU & eating iron-rich foods.

I have a lot of food intolerances and genetic issues with absorbing vitamins & water to boot. She's about to check me for MTHFR. She said I was limited in the essential building blocks of life for a long time. Most of the damage from gluten & mercury poisoning has healed! It was very bad & I thought that would be the end of story but it's not. The doctor is on a hunt to determine the rest of the pieces. I'm enthralled with the world of genetics. Seems nothing is simple.

On a positive note, what's turning up from all this is proof of my real strength and will to live! I just have to be careful right now and would really love feedback from someone who has experienced IV vitamin therapy.

In Topic: Iv Nutritional Therapy

22 March 2015 - 02:14 PM

Honey, my intestines are't completely useless and there has been improvement over time.

Anyone out there ever done the IV nutritional therapy? If so, I'd love to hear from you. PM me if it's more "convenient".

In Topic: Please Help...feeling So Discouraged!

21 February 2015 - 04:38 PM

I'm sorry this is so discouraging for you. I know how frustrating it is when you're trying so hard to stick to a healthy diet and you still hit setbacks. Have you ever heard of Cyrex labs? They do a lot of different tests for food sensitivities and gut permeability and I'd really highly recommend getting some tests done. I was in the same boat as your husband last year. I had been gluten-free for a year but still felt like crap, in fact I felt even worse than I did before going off of gluten. Constant digestive issues, extreme fatigue, hormonal problems, you name it. I got a few Cyrex tests done and I found out that being gluten-free wasn't cutting it. I'm also sensitive to dairy, corn, amaranth, teff, and tapioca. I was SO overwhelmed by this, but I actually felt better after going off of those foods, so it was worth it.

I think that sometimes you can go on an elimination diet where you cut out all foods that can cause sensitivities such as grains, dairy, eggs, nightshade vegetables, etc., and then add them in one by one to see if you have a reaction. To me, it was worth it just to get the lab work done, but you might want to think about that as well.

Gut healing is a weird thing because it really does seem to get worse before it gets better. Hang in there.

I also found success with the food intolerance blood test. Mine was a different company. As soon as I eliminated those foods, my inflammation calmed and I could raise my arms above my head (literally was in too much pain previously). I still struggle with my health but quelling the constant inflammation has allowed my gut to heal.

In Topic: My Heart

01 August 2014 - 07:28 AM

My inflammation seemed to have been related to my lymph system reacting to foods added back to my diet. I thought back to when I got sick and tried to eat only foods that I had not eaten during the coarse of my illness. I found new foods and ate them. It seems to be working. If you know which foods you have antibodies to, you can stop eating them.

To move lymph, exercise is a good thing I have learned. I started with squats, sit-ups and push ups. I began a rebounding routine. In the summer I need to skip that at times. I garden and walk the kitchen to freeze the produce.

I've been doing testing for irregular heartbeats this week. Same kind of thing, feeling butterflies/bubbles in my chest. Wore the Holter Monitor for 24 hours and it confirmed I have some irregular heartbeats, about 10% of my beats are "off". Since I'm also recently diagnosed with Celiac and Sleep Apnea, my Dr. wants to wait to start any meds, beta blockers, to see if going off gluten and getting better sleep help. I am tired ALL the time. I wish I could sleep for 12 hours...but even then, I probably would still be tired. They decided to check me when my heart rate was 35 while doing my sleep study. With my Monitor, my heart rates were between 40-81, with activity, walked about 5 miles during the day with it on, including climbing several flights of stairs.

I'm not sure where you live, but when you have multiple conditions, it might be worth a trip to Mayo to have everything checked out at once. My endo discovered my Celiacs during a "lets just make sure" test order. They will check everything, run tests you probably have never heard of and try to get to the bottom of things for you. It's an amazing place and I just can't recommend their medical model enough when you have multiple issues. Typically they check you in on a Monday morning and you will get a physical and discuss your history and reasons for being there. They will make recommendations about testing and other dr's to see. Usually you spend an hour or so doing that. Then they do the actual physical exam and if they find something else, etc. they add that. By the time you are dressed and ready to talk to the dr again, you have a multi-page itinerary for your next several days with your lab work, dr appointments, etc. on there. Appointments are added and deleted during your stay as necessary. I"d suggest starting with an appointment with the endocrinology department, mainly because they act at a "primary" doctor and since your endocrine system may be suspect, you have to start somewhere :D. During my visit I've met with my endo, 3 GI dr's, 2 dietitians, did a sleep study, met with the sleep team to learn about using a CPAP (which has helped a lot), had 7 pages of labs done, an endoscope, bone density testing, cardiology consult......you get the idea :D. Good luck!!!

Thank you! I wish I had gone through Mayo years ago when a friend of mine recommended it. At the time, I was too ill to figure much out. Looks like the closest one is in Arizona. My doctor is waiting to be certified by Mayo and I assume that means certain testing will be available to her. I had so many doctors at one time who couldn't figure much out and all private practice. It would have been nice to go through a systematic process with a team approach as it sounds like Mayo provides. My cardiologist was going to have me wear a holter. Beating my chest 3-4 xs a day, as odd as it sounds, is raising my heart rate and BP so she wants to see how that pans out.

Interestingly, my doctor sent me home with an at-home sleep test a few months ago. You just motivated me to do it! There are a few more tests she's going to run in the next week. She wants me to push over the hump (employ mind/body healthy practices). She has also referred me to a naturopath who she hopes can help me with reactivity.

I received my bone density test results yesterday and must begin weight bearing exercises. It's tricky avoiding the heat and the "boom boom" gym across the street would send me to the ceiling. Weightlifting never steered me wrong (an old love affair) and so will start with some dumbbells at the house. This should motivate me towards light cardio.

Last night I drank some adaptogen tea that was very relaxing and calming to the nerves. I'm going to research it more. The only thing bothering me right now is my elbow because I slept hard on it all night.

You guy's support really helps. :)