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Member Since 01 Dec 2012
Offline Last Active Mar 24 2015 12:18 PM

Topics I've Started

Iv Nutritional Therapy

22 March 2015 - 10:06 AM

Hi folks,

So my doctor saw a pattern in my old labs and said my body isn't absorbing nutrients and have been this way for years. In addition, I have sleep apnea and my kidneys aren't holding onto water so I'm limited on FOOD, AIR & WATER.

The doctor is ordering a CPAP for me and has put me on weekly IV nutritional therapy along with increasing my iron, vitamin D (10,000 IU.) and probiotic supplements.

Has anyone had IV nutritional therapy and, if so, how long did it take to start feeling better? I just had my 2nd treatment and it's wiping me out. I'm less active than before and doc says to be careful. :/


My Heart

07 May 2014 - 09:47 AM

I need to get this out and don't want to share this with my loved ones. I'm worried about what damage has been done to my heart by all of this illness and stress I've been through. My doctor confirmed the "bubbles" I'd been experiencing were palpitations. I honestly thought they were bubbles - I guess I watch too many movies. I have had arrythmia since '11.

On Monday, I saw a cardiologist for low heart rate and palpitations. My resting heart rate was 44. I have had chest pain on and off but, of course now, it seems to be a constant pressure. Tomorrow, I go in for a resting ultrasound and next week, a stress test ultrasound.

This morning, I woke up with a lot of inflammation and know this isn't good for the heart. I never realized that my gluten discovery was only the beginning. I thought I was lucky as hell to have discovered my problem when I did as I was very sick and doctors were befuddled. It's as if I put all of my energy into those years seeking diagnosis and I need more now to continue and it's just difficult. It just didn't occur to me that I could have other damage from all of that inflammation and illness.

I'm scared that I'll be sick the rest of my life and the struggle will never end... or that I won't survive. I hope I can walk my way out of this or that it's a simple fix. Doing some serious bargaining like, if it's simple, I'll never complain about anything again.

Is A Gi That Specializes In Celiac Necessary If Not Seeking Diagnosis?

09 April 2014 - 11:27 AM

Is seeing a Celiac GI specialist important if I'm not seeking diagnosis? My current doctor has recommended me to a new GI doc. I told her I didn't want a doctor who wasn't up on Celiac and she told me he was a good doctor.

Nine years ago, I had an adenoma polyp removed and that GI doctor was "blown away" that I had that at my age. The only reason I had the colonoscopy is because of the undetermined 2-month stomach illness after returning from Mexico. Three years later (six years ago), I had another one and I got the all clear - no colonoscopy for another five years.

I'm a year late getting my third colonoscopy and know I need to get in there. I have not been diagnosed with Celiac and do not know if there is anything a Celiac specialist would look for outside the bounds of an ordinary GI doctor.

If I hadn't have been down so many paths with doctors who missed things, I wouldn't be concerned. I know a colonoscopy can't determine Celiac and that's not why I'm going (I've tried but I cannot complete the gluten challenge). I just don't want to go to someone who doesn't have keen knowledge on what to look for if there WAS something a person with Celiac might be more predisposed to having/developing. I don't want to screw up on this but I haven't read anything that would indicate a specialist is warranted.

Celiac Disease Or Non-Celiac Gluten Sensitivity?

09 April 2014 - 12:26 AM

I thought this part of the study was interesting. It brings to light how some people can go gluten-free except for their beer and they still feel better. I'd like to read more studies on Celiac vs NCGS.

"Whereas celiac disease subjects should maintain a lifelong, strict GFD and limit their exposure to gluten to foods containing less than 20 parts per million (13,14,15) NCGS subjects can be more liberal and titrate their exposure to gluten as needed to avoid symptoms."


Reintroduced Foods And Still Intolerant?

07 April 2014 - 06:22 PM

I do have leaky gut and tested intolerant to 55+ foods. About six weeks ago, I decided to start reintroducing a few. I hadn't had egg yolks or bananas in five months and they were a no go. I hadn't had dairy in over a year and OUCH! It is WORSE than before!

Does this mean I should scratch these off the list forever? I have stopped reintroducing foods. It's not worth it to feel lousy.

Anyone have success in reintroducing foods that you were not successful reintroducing previously? If so, how long did you wait?