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julissa

Member Since 03 Dec 2012
Offline Last Active Today, 01:15 PM
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#900472 One Year In With Celiac 8-Yo Daughter. Feeling So Sad.

Posted by julissa on 22 December 2013 - 11:30 AM

this is such a great thread and so what I needed to see right now. I have now been gluten, dairy and soy free for one year. I have gone through lots of learning over the past year, and now have settled into my reality. like what has already been said, I miss the days of spontaneous living, just heading out the door for the day, planning a weekend, etc. I now don't eat anything if I didn't make it. I have gone through too much being sick this past year, and part of my learning curve is that I am super super sensitive. adding the dairy and soy to the mix, well, eating out or grabbing a quick bite somewhere is just not something I do anymore. I sometimes get angry, really missing my old life, but I have adapted. like you have said, I  have things I can grab quick and have on hand to be out. I keep food in my car, you never know when your plans will change.

 

I no longer stay home declining social settings, I go to restaurants and bring my food. I don't ask, I don't talk to the waiter about it. when others order, I just order a drink, I mention nothing, then whip out my food when others are served. no one anywhere has ever said  a word. this is my reality.

 

I feel wonderful, my body has just adjusted itself to a healthy weight, so all in all I am happy. every now and then a little pity party rears it's head, and just remind myself that there are many who would trade medical conditions with me.


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#871347 The New Celiac Drug Is Out There

Posted by julissa on 29 May 2013 - 04:37 AM

I was so relieved to finally know what was making me sick after so long trying to get answers, that I went gluten free joyfully, and still am joyful about it.

 

I too miss spontaneity and being able to eat out confidently. I eat out rarely and it's always a crap shoot for me. I usually feel it's not worth it. 


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#871094 The New Celiac Drug Is Out There

Posted by julissa on 28 May 2013 - 04:14 AM

ABQ, I never see posts as condescension, I see them as giving hope once you are in it longer and longer.


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#870471 Gi And Allergist Appointments- Suggestions?

Posted by julissa on 24 May 2013 - 08:05 AM

after my diagnosis I still had stomach issues, although thankfully at a much lower level, so I went to an allergist. I had some idea of what was bothering me, so she did food testing for that plus other common problem foods. she found a dairy and soy allergy, so I cut those out right away.

 

do you have an idea of what foods may be problematic for your daughter?


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#868837 6 Months Into My Gluten Free Life

Posted by julissa on 15 May 2013 - 04:45 AM

I wanted to share that there is light at the end of the tunnel for anyone still suffering. hang in there. I had different symptoms ranging from nausea, extreme heartburn and horrible dizziness with brain fog.

 

now, gluten, dairy and soy free 6 months later, I am living my life without being afraid to make plans for fear of being too sick to go anywhere.

 

I also noticed another thing I had cleared up, and didn't ever associate this with my issues, my eyes are a lot clearer. there had been days when after watching tv for a while, or being at the computer for a while, my eyes got all out of focus and I couldn't drive. I just noticed that doesn't happen anymore, so happy I got to the bottom of all this.

 

and thanks to everyone here, and all the great info I never would have known if it weren't for this forum :)

 


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#862282 Celiac Vs. Gluten Intolerance

Posted by julissa on 07 April 2013 - 06:06 AM

this is a great thread. I agree it does not matter to us if we have a confirmed diagnosis. we know our bodies and that's what counts.


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#861182 Refills And New Manufacturers

Posted by julissa on 30 March 2013 - 05:31 AM

A few weeks ago I got a prescription and took it to my Walgreens on the corner that I had been using for years. I asked the pharmacist to check on gluten-free status since it was something new to me. he wouldn't check, told me it was crazy since no meds had gluten. he told me I would have to get the meds then check myself.

 

I couldn't speak.

 

I asked for my prescription back and took it to a little mom and pop pharmacy that still exists in my town. they were happy to check and now I only go there.


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#857783 Am I Just A Wuss? (Staying Home After Gluten/soy/whateverings)

Posted by julissa on 10 March 2013 - 09:33 AM

Gemini, thanks, I do intend to keep working at it :)

 

Cavernio, I strongly disagree here, socializing may revolve around eating out, at work, with friends, wherever, but just because eating out is so common to our lives, doesn't mean we have to. I take a cooler wherever I go. I go to certain restaurants with my food, I refuse to eat something that may get me sick. people I am with totally understand and help me with choosing places, etc.  other restaurants that I wouldn't take food to, I just don't go.

 

people ask me if just a little would hurt, how sick could I possibly get. I ask them how sick they could possibly get eating rat poison.

 

I am also done here. 


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#843587 How To Know If It's Really Gluten Free?!

Posted by julissa on 17 December 2012 - 10:42 AM

so sorry that happened to you, feel better.

yesterday I was out with my dh and friends and we saw a pizza place that had a sign that said gluten free pizza. so we went in and I asked about it. I saw flour all over the counter, and everything out in the open. I was told they have the gluten-free ingredients in another room, have a separate oven, and use separate utensils. that made me feel like there was promise there. I didn't eat since we had just eaten, but I would go back and try it. my friend who was with me was amazed at all the questions I was asking. I think you just have to be proactive and ask questions before you have anything out.
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#840754 Christmas Parties

Posted by julissa on 03 December 2012 - 06:10 PM

I wouldn't skip the parties. I would eat first so you aren't hungry, then get something in your hand like a drink of water, or whatever you like, and enjoy the party. it shouldn't be about the food, you are there to enjoy yourself. if you want to bring something, that is a good idea, so you know there will be somethere to munch on if you want it.
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