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mum24boys

Member Since 04 Dec 2012
Offline Last Active Dec 22 2012 03:22 AM
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Topics I've Started

Im New And Confused And Need Some Help And Advice.

10 December 2012 - 07:10 AM

Hi, I'm based in the UK and am new here. Iv been ill for 1 year now. It started last Nov with what I thought was a sickness and diarrhoea bug (vomiting with a very sulphur smelling vomit disgusting smell) but continued into stomach pain. It seemed to affect me when I ate fatty foods so my GP referred me to the surgeons to have my gall bladder checked and I stopped eating anything with fat in it. Although bread and pasta made me really ill, 1 piece of toast can have me doubled over within 10 mins of eating it. I kept a food diary but the Drs were not interested. After months of been messed around I had a HIDA scan which came back normal. This has led me to start looking into other reasons why im feeling so ill. My symptoms are. Severe stomach cramps/ache, bloating, constipation/diarrhoea alternating, vomiting, heartburn, wind, feeling sick, rumbling stomach. More recently these other symptoms have started from August this year, erratic periods that are all over the place and terrible pmt which iv not suffered from since I was a teen, hot flushes, raised temp not a fever but to 37.9, headaches, flu like symptoms, odd watery taste in my mouth, Cold sweats, tiredness, aching joints specifically my feet and knuckle joint on the left hand, total disinterest in sex and an odd stitch like pain in my right side and spots even though im 37 and a swollen feeling in my throat. Iv had a camera down and that showed mild irritation which I was put on a PPI for, a HIDA scan which was normal and blood tests which all come back normal. Iv been in hospital once about 4 weeks ago because of the pain and am on tramadol and oramorph. My GP has tested me for Coeliac last week and the result is normal. Less than 1.23 but I don't know what that means. Iv been on a gluten free diet from last Monday. My GP told me to continue to eat gluten until the test as I had stopped eating gluten a week before but as soon as I had the test I went back to gluten-free. Could this be the reason it came back normal? I'm slowly starting to feel better my spots are healing and my joints are not so achy but I'm still getting bad stomach pains and am really tired. Although after reading some of your advice its really not so surprising. Question is do I really need a diagnosis as there is no way im going to eat something which is obviously making me ill as I know I feel better not eating it. Iv got to go for an endoscopic ultrasound tomorrow and im going to ask them to do a biopsy for coeliac as im only doing this once. Do I forget all the Drs and go with what I think it is ie Coeliac disease? My youngest son has severe systemic onset juvenile arthritis and iv read about the connection. Would it make coeliac more likely in me? He keeps complaining about belly ache after eating bread so im going to get him tested at his next clinic app. Please Help.