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Sarahsmile416

Member Since 05 Dec 2012
Offline Last Active Mar 10 2013 10:07 AM
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Topics I've Started

Two Months In And Food Intolerances Are Growing! Why?

07 February 2013 - 11:44 AM

So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized, I had become intolerant to dairy - something I had expected to a point given the state of my gut. However, I figured that would be the end of it, hopefully! Because of my dairy intolerance I thought I would try the So Delicious Coconut ice cream - definitely delicious and no ill effects. This past weekend I saw they had a no sugar added variety and because of my diabetes, I figured that might be better than the other. I tried it two nights ago and was okay that night but later on, not so much. As an experiment to confirm it was that food that had given me the problem, I ate it again...same issues. I'm trying to figure out whether it was some added ingredient in the NSA variety or if it is the So Delicious brand in general. I have heard people have had reactions to the carageenan in that, but figured I was okay because I haven't reacted to the yogurt that had it in it or the first So Delicious brand I tried. However, maybe like everything else, I am growing intolerant to that too.

I guess my question is, is it normal to have growing food intolerances two months into the gluten-free diet? If so, why? All I know, is that it becomes very frustrating to have to keep adding foods to my do-not-eat list. :(


Pathologist Report - Help Needed!

19 January 2013 - 08:54 AM

Want to clarify - diagnosed myself a month ago after negative blood tests and negative biopsy as NCGI and have been gluten free since late December.

Went to the doctor two days ago and was pleasantly surprised. Apparently it is just her nurse who is a moron...I did find it funny that the nurse wanted as little to do with me as possible after I excoriated her on the phone.

The doctor on the other hand, when I told her I was still having problems she said that I might easily be gluten intolerant (which, duh, but from what I have read on here, she seems to be one of the few doctors who acknowledge it!) and given the amount of inflammation I showed I should give up dairy for awhile. I was just very happy to hear my doctor parrot what I have been reading on here! I have also been doing my food diary all wrong - only recording major reactions and not minor ones, whoops!

Anyway, I asked her for the pathologist's report and she gave it to me. Shorter than I expected (2 pages), but shockingly some things were done that I did not expect (they DID test for eosinophils, which were not present).

Here it is, in most of its entirety:
Clinical impression: Abnormal mucosa in duodenum; normal mucosa entire stomach; erythematous esophagus.

Gross description: Received in zinc-formalin are six fragments of red-tan soft tissue measuring 0.9 cm x 0.6 cm x 0.2 cm in aggregate.
Received in zinc-formalin are two fragments of red-tan soft tissue measuring 0.4 cm x 0.3 cm x 0.2 cm in aggregate.
Received in formalin are two fragments of soft tissue measuring 0.3 cm x 0.3 cm x 0.1 cm in aggregate.

Miscroscopic description:
Small bowel mucosa with foveolar metaplasia and Brunner gland hyperplasia. Giardia and other parasites not identified.
Foveolar cell hyperplasia, edema of lamina propria and minimal inflammation. No evidence of intestinal metaplasia, malignancy or dysplasia. H.pylori not present.
Esophageal mucosa with basal layer hyperplasia and elongation of esophageal papillae. Eosinophils are not present. There is no columnar mucosa present.

Final diagnosis;
Duodenum, Biopsy with Cold Forceps:
Chronic duodenitis with focal foveolar metaplasia and Brunner gland hyperplasia.
No evidence of celiac sprue.
Giardia not identified.

Stomach, biopsy with cold forceps:
Reactive (erosive) gastropathy
Silver stain negative for H.pylori

Distal esophagus, Biopsy with cold forceps
Hyperplastic squamous mucosa most consistent with chronic reflux esophagitis.
There are no eosinophils present.
No evidence of Barrett's esophagus; no glandular mucosa present.

Phew!! Anyone able to decipher the medical speak for me?
Thanks!

Dairy And Ncgi

16 January 2013 - 04:05 PM

Hi -

Was DX about a month ago as esophagitis, gastritis, and was told I did not have celiac. Of course, knowing myself and my reactions to gluten, I went gluten free almost immediately following the endoscopy. I have been doing well since then most of the time.

Because I have read on here about avoiding dairy if you are Celiac or NCGI, I have done my best to do so. But for me it is hard because my reactions are very varied. For example, I can eat sugar free tapioca with no problem even though it is milk-based and can eat small quantities of butter as well. However, sour cream leaves me down for the count! I have been trying to eat Fage as I did before my DX to varied results. I ate a blueberry 0% fage and felt some minor cramping and a little gassy, but today, I had a strawberry fage and I have been in bed since 1pm with horrible abdominal discomfort and D. My question is two fold: 1) what is it about dairy that doctors will tell you to avoid it when you have gut issues? 2) why am I having reactions to some forms of dairy and not others? I think that's what is keeping me from avoiding all forms of dairy at this point...can anyone help?

Better N Peanut Butter- Really Gluten Free?

13 January 2013 - 01:04 PM

Has anyone tried this brand? Just got it at my local Wegmans - was labeled gluten free. I made a sandwich (with gluten-free bread) and had peanuts and glutino pretzels...all of these things I've had before with no reaction...but right after eating, I had a reaction...my first in a week or so :(

So now I'm confused, is it really gluten free or is it the soy that they say it contains? I am really confused...

Auntie Anne's Pretzels

07 January 2013 - 11:42 AM

I am not sure whether this is the right forum for this because I know these are obviously NOT gluten free, but I was wondering whether anyone knew what kind of oil they use when cooking them?