ABQ-Celiac

When I was first diagnosed, I found such a great amount of comfort on this forum.

 

Lately, I've noticed - not just in this thread - this self-satisfied notion among "long time" celiacs and a real condescension to anyone who hasn't been at it as long.

 

It's turned me right off. Minimizing the experience of "newer" celiacs will drive them away. Like me.

 

 

the difference may be that I have been gluten free for almost 4 years .

At 9 months gluten free I was still grieving the loss of gluten and was ( like you) searching for a gluten free bread that was the same ( taste ,texture ) as gluten filled bread .

 

Now, after almost 4 years gluten free  there is absolutely no temptation or desire for gluten in any shape or form .

Bread ( gluteny or not ) is overrated

It's so funny how different we all are. After almost 9 months off from all dairy and gluten, the only thing that enters my dreams, the only thing I get physical cravings for - bread.

I can't imagine that I'll never enjoy bread again. It fills me with a really profound sadness. Pizza. Okay I can live. Bagels. I miss them but its okay. Donuts, all right.

But, a piece of white Mrs. Baird's bread? I miss the texture and the flavor and the flexibility of that so much. Every gluten-free sobstitute (sob...) I've tried has been just a crushing disappointment. The aftertaste. Oh god. I get a little nauseous even thinking about it. If incompletely burn a gluten-free piece if bread and slather it with some honey, I can pretend life is going on normally. Otherwise, I'm just tolerating things.

I hate that it is so for me, but this is what I've found to be the most depressing about my new diet.

Hi Bart. I've only been gluten free for 8 months. I have to heartily disagree on the bread thing. I've been through every gluten-free bread imaginable, even dropping a lot of money at one of the most talked about gluten free bakeries in the country (Revolution in Santa Fe), and nothing - for me at least - comes close to regular bread. I appreciate your perspective, and I'm glad you found something you can enjoy, but I have not. And that's valid.

 

 

 

 

ABQ, you're new here so I assume you're fairly new to gluten-free. After a while you won't miss bread at all because if you try some Canyon Bakehouse San Juan 7-grain, you'll see that it tastes BETTER than regular bread. Even my gluten eating friends agree. And if you learn to bake, you can make great tasting breads. (I admit, I have never done it, but I trust the word of others here who have.)

 

Out for an evening? I bring my own. Travel? There are grocery and health food stores just about everywhere. I bring a George Foreman grill and cook for myself.

 

I'm not trying to be critical, but I just don't trust drugs. They ALL have side effects, and the drug companies and FDA seem to be using us as guinea pigs when it comes to new drugs. Vioxx was supposed to be so wonderful until they found out it was killing people. Same with Celebrex. And what's the name of that drug Sally Field advertised? It was supposed to prevent osteoporosis, but then they found out that it was causing really nasty long breaks in women's thigh bones. The list goes on and on.

 

It's an individual choice, but for me, the only drug I take or ever want to take is Tylenol. Even with that, I try to go easy because it can cause liver damage.

 

Oh yeah, did I mention I am a bit paranoid? BUT - am I paranoid ENOUGH?

Hi! Yes, I wasn't diagnosed until I was in my 50s, so the amount of damage was fairly extensive. I still have bad nausea days, sometimes from cross-contamination, sometimes - as my doctors say - because my stomach is just doing the best it can.

 

We had an RV years ago, though, and are thinking of getting one again. 

 

Cheers!

 

 

That sounds great!  We have an RV which makes it a lot easier, but travel for business too.  Purchasing a "throw" away Styrofoam cooler upon arrival  is handy or cramming a collapsible  cooler into our luggage has saved us when we haven't found a frig in our hotel room.  Our fast food is shopping at grocery stores now.  Just a few visits, like you, to Wendy's or In-N-Out when we're sick of cooking.  

 

We always keep a few cans of gluten-free soup on those trips for emergencies.  Our little cheap toaster is invaluable for sandwiches.  And there's nothing like a bowl of Rice Chex with added fruit to start your traveling day.

 

Thanks too for letting me know about your recovery.  I'm still a newbie and I guess I'm just going to have to accept the fact that it took years to damage my villi and years to completely heal.  The good news is that I'm feeling much better.

I'll pass. Why should I take a drug that will cost me money, force me to see a doctor, probably give me side effects, and may even cause real harm (anybody remember the hormone replacement therapy all the doctors wanted us on?), when I can stick to a gluten-free diet for free and with no harmful effects?

 

I think I'd try it because I find it difficult to eat gluten free everywhere, travel, out for an evening, etc. I simply miss bread. I hate to be such a weenie, but for me, there's nothing like real bread. If the testing goes well, I'll be in line to try the drug.