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Member Since 07 Dec 2012
Offline Last Active Dec 12 2012 03:30 PM

Topics I've Started

Atypical Symptoms; 1 Monthly Attack

09 December 2012 - 07:33 AM

History: lost my memory at age 26 in 2007. Dx'ed with hypothyroidism 2008 - synthroid hasnt helped the memory. Not so. Neuro. suggested hashimoto's encephalopathy but was reluctant to start treatment until felt more confident. Finally had neuropsych. testing May 2012 - pretty sure it confirmed my pisspoor memory. havent heard from the neuro.

Saw another endocrinologist June 2012 for another opinon re: memory. He said it might have just occurred at the same time as the thyroid and thus became related - he suggested testing for CELIAC, sleep apnea, B12 etc. This is without having heard of my gut troubles.

ive had a good gut all my life until now.
Oct 2011, Jan 2012, Mar, May, June, July - had severe, nonradiating gut pain with vomitting and diarrhea. I assumed it was food poisoning.
Saw GP in July who ran the suggested tests - gluten antibodies, inflammatory markers, abdo. ultrasound all negative.
Started gluten-free diet july 19-Aug 10 and avoided an attack in august.
A pesky, blistery foot rash (GP wasnt sure if it was the telltale dermatitis herpetiformis) started to clear up - no salve Id thrown at it over the past year had helped. Had to cancel my derm. appt.

A month and a week after re-starting gluten, had a september attack... severe... More than once Ive considered going to the ER because the pain is inescapable. Lasts usually from 7am-5pm. Sometimes shorter. Pain so nauseating sometimes I just self-induce the vomiting because the constriction offers momentary relief. I also get systemic fatigue, feel terrible, in a cloud almost.

started back on gluten-free diet after that. Early october ate a club sandwich, got a mini attack Oct 16... desperately wanted to believe it was food poisoning (I did eat something kind of old!).. but also the pain was different this time, I could sit comfortably for a few minutes, I wasnt so mixed up in the head.

The rest of the month Im fine. My theory is that perhaps Im just gluten intolerant, and my threshold is a month - so it builds up over this time period until it explodes.
I see gastro. Dec 10. and have been gobbling gluten for 3 weeks, hoping he'll proceed with the scoping etc.

thank you!

Atypical Symptoms (?), 1 Monthly Attack

07 December 2012 - 03:48 PM

I was Dxed with hypothyroidism in 2008 and lost my once fabulous memory as of late '07 (26 at the time). Since then, I'd always assumed my memory was related to my thyroid, questioned doctors about supplemental T3, had neuropsych testing only this past spring which I'm pretty sure confirmed that I had definite short term memory losses (it was certainly obvious to me), and a clean MRI. Hashimotos encephalopthy was being considered, but never pursued (no other neuro symptoms).

I've had a good gut all my life.
I had a severe gut pain attack in October 2011 that I chalked up to food poisoning. Throwing up, diarrhea.
I had another attack January 2012, another in March, May, June, July (the latter two were a month and a day apart). In June, I had gone to another endocrinologist for a second opinion about the memory thing - He recommended being tested for CELIAC'S, sleep apnea, B12 (its always been fine), maybe some other basics. He suggested celiacs without even hearing about my gut.

I also had a terrible rash on my foot which no salve could cure.
After the July attack, I knew it couldnt possibly be constant food poisoning and went to my GP who suggested trying the gluten-free diet. My antibody tests and others were negative including abdominal ultrasound.

I did the diet July 19-Aug 10 and avoided my august attack. My foot rash pretty much disappeared, so I had to cancel my august dermatology appt.
Started back on gluten. Got the attack again mid-september (1 month and a week after re-starting gluten). The pain was so bad, I called the gastro doctor's office in tears, begging for an earlier appointment. The pain is so nauseating I'll make myself throw up because the constriction offers some relief. I'm on the toilet every 10-15 minutes. Episodes usually last a whole day 7am-5pm, but I have had some shorter.. 7am-2pm. I re-started gluten-free after september. Early october, I had a club sandwich and had a much more minor attack on Oct 16th - which I truly wanted to believe was food poisoning because I had eaten 1.5 week old cheesecake (gluten-free, no less - ha!) - the pain was "different", I was able to sit comfortably for a few minutes, I also didnt have the mental and systemic fatigue that I usually do, and it lasted only a few hours.

My theory is that possibly I have the ill-understood "gluten intolerance", where it builds up to unacceptable levels throughout the month until it reaches threshold and explodes.
I see the gastro on Dec 10 and have been gobbling gluten since end of November in preparation.

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