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Member Since 11 Dec 2012
Offline Last Active Sep 16 2014 04:44 PM

#899353 The Whole Church Turned Around

Posted by on 12 December 2013 - 05:55 AM

and looked at me!  I attend a really great small church.  About 200 people so its pretty small.  We are like a big family, really.  Most of us are there on Sunday morning and evening as well as Wednesdays.  


Anyhow, before service people stand up and voice their desire for prayer for various people or things in their life.  Well, someone requested prayer for their brother who has recently been diagnosed with Celiac Disease.  "Something to do with gluten or something."


The whole church turned around and looked/smiled at me!  It was actually really sweet.  Everyone in my rural church in the sticks are gluten savvy.  I don't know, for all the times that we run into people that make things awkward, this was a moment where things were made completely awkward in the best way possible :-)


My friends were joking with me afterwards, "Hey, did you like how the whole church immediately turned around and looked at you?"  


It was pretty funny.  I love them.

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#891613 Wvu Quarterback Is Gluten-Free

Posted by on 11 October 2013 - 12:25 PM

I am sure many of you already heard this.  West Virginia University starting QB Clint Trickett apparently has Celiac Disease.  I found it really motivational that he is out there competing at the Division I collegiate level on Saturday's at my alma mater.


Apparently, he was diagnosed during his first or second year at Florida State.  He was working out with special teams pre-diagnosis.  After starting the gluten-free diet, he started working out with the big boys on the team.  Pretty cool.

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#890751 Thank You

Posted by on 04 October 2013 - 09:35 AM

To the members of this forum, the administrators of the this website, and the moderators I would like to say thank you from deep within my heart.  ALL of YOU have played a major role either directly or indirectly in helping me heal both physically and mentally.  I am BLESSED beyond belief to have access to this forum.


Some of you have invested time in lifting me up, sharing experiences, helping me correct some perceptions to make sure my diet is fine tuned, and made me feel like I am not alone in this journey.


Even when I don't post, just being able to read others comments has helped me so many times understand something strange that my body has done.  I get worried, find a post that addresses that exact issue, adjust, and move on.  This is my birth month and this time last year I really didn't know if I would see it.


I am still trying to work some things out but have came so far.  Your time has not been wasted on me, I TRY everyday to do the things I need to do to be healthier.  With my gluten-free diet in place I am now concentrating on bone, muscle, and tendon health.  I have kicked coffee, soda, and alcohol to the curb in an attempt to accelerate my bone health.


Anyhow, again, thanks to all of you for...  Being you!  

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#890678 Ridiculous Conversations

Posted by on 03 October 2013 - 05:59 PM

Its now entertaining to me that "others" think they are somehow eating better food than I am.  Not true.  You had a combo from Wendy's on the way home from work?  You're right, I'm missing out.... Or not...

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#889726 How To Deal With Unsupportive Friends?

Posted by on 26 September 2013 - 05:16 AM

In unrelated news...  I was sitting in church the other day and there was a reference to wheat or bread in the bible...  I leaned over and told my girlfriend, "My Jesus doesn't eat wheat."  HAHA!  Okay, so maybe I thought the comment was funnier than it really is but she looked at me, laughed, and started shaking her head.  Your talking about interactions with family and friends made me think of that for some reason.

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#888985 Emergency Id Tag

Posted by on 19 September 2013 - 04:44 AM

Funny that you mention this.  I actually picked up a brochure for ordering one.

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#888983 Am I Right To Feel Offended?

Posted by on 19 September 2013 - 04:43 AM

She was being very selfish.  Your hubs is right to be upset.  I am inviting YOU to be a little offended :-)  There are certain situations (this is not one) where I want to join a group enough that I will go somewhere that I have no intention of eating if I am able to eat beforehand.  It's rare though.  

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#873831 Celiac Vaccine? Not For Me

Posted by on 10 June 2013 - 07:54 PM

1.  Every industry has good and bad--Pharma is no different.  I should remind a poster in this thread that there were a lot more people dying of cardiovascular disease in the 60's than there are today.  Thank you "BIG PHARMA" for blood pressure medicine that helps prevent strokes.  The reality is, when society puts money behind research for a disease state, things happen.  People that were dying with AIDS in the 80's have a much better shot at life if they are diagnosed today....  Thanks to...  Wait for it...  Pharmaceutical research.  Most of the algorithms used today by HCP's are the result of pharmaceutical research.  Don't get me wrong, they love to pad the coffers but every now and again we get some great therapies.


2.  I will stay on the sideline until more long term data surfaces.  Even at that, I plan to stay gluten free.  I know what my body and immune system are right now today and I can handle that.  Its better than the unknown of tweaking things with a vaccine that will alter my immune system.  Thats a little scary to me.


3.  There may be people out there that are having much more severe symptoms than me who need relief that it could provide.  I don't know that it will but I can see someone with refractory sprue looking for some relief.  

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#872107 Support Forum Is It?

Posted by on 01 June 2013 - 07:43 PM



Stick around.  I always try to remember that we all have opinions and very different bodies.  What works for some doesn't for others.  One person will have the best Endo in the world and swear by them while another has gotten the run around by 2 or 3.  I eat dairy products, some would tell me I'm absolutely crazy for consuming it early in my "healing" but I needed the weight desperately and could pound serious calories that way, additionally, I wasn't having symptoms from it--but some do...  It's a difference of opinions clearly, but both opinions are correct in the right given individual.


If one keeps that in mind as they read these threads it makes it easier to sort through what applies to you and what doesn't.  One of the many things I LOVE about this board is the honesty.  People say what they think and its not real sugarcoated.  This place is a great go-to for me because it allows me to talk disease state with others who "get it" thereby allowing me to enjoy the relationships in my daily life without having to constantly burden my friends and family with conversations that begin with "Do you think..."


Anyhow, stay tuned.  You'll find good info here.  Its true, there are some sharp people here.  Happy Saturday!

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#871965 Do You Think A Person Can "recover" From Gluten Intolerance?

Posted by on 01 June 2013 - 04:13 AM

If by recover you mean healing of various processes and systems in the body, sure.  If you mean ability to eat gluten without consequence, then no.

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#871297 My Only Celiac Friend Started Eating Gluten Again, And I Feel Alone.

Posted by on 28 May 2013 - 06:38 PM

Don't totally give up.  You may be the only person that has the ability to call her on what she's doing.  The right time will present itself and hopefully you'll be there to gently remind her that her quality of life really hinges on being gluten-free as a celiac.  I have no friends locally that have celiac disease.  I think its why I am so grateful for this forum.


Anyhow, you're not alone.  Hang in there and maybe your friend will come around again eventually and when she does you'll be there to help lift her up if you feel so inclined.

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#870214 The New Celiac Drug Is Out There

Posted by on 22 May 2013 - 07:02 PM

I would submit that drugs can help or harm people.  It depends on the compound and the disease state in question.  If you ask someone who is living because a drug like gleevec keeps their cancer from progressing further, I would venture to say they will tell you they are grateful for the "evil, greedy, big pharma companies".  Its imperfect to be sure, but it's what we have.


With that said, for my celiac disease, I am comfortable sticking with a gluten-free diet.

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#869774 Lost A Parent To Celiac

Posted by on 20 May 2013 - 10:58 AM

Sorry to hear about your mom.  I lost my dad seven years ago this coming weekend.  The only thing I was going to mention is that certain medications affect potassium retention or excretion.  Blood pressure medicines can do this depending on the class.  ACE inhibitors, angiotensin receptor blockers, and direct renin inhibitors.  A lot of variables could have played a role, not just genetics.


I think if you have celiac disease it certainly increases the percentage risk that a relative has it but the overall odds are still stacked against it.


So, so, so, sorry.  Hang in there, miss.

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#867838 Brand New Celiac Here With Tons Of Questions

Posted by on 10 May 2013 - 03:43 AM

Welcome to the forum!  You are in the right place.  I can't tell you how much reading what these gluten warriors post has helped me out in my daily life.


1. Bone Pain--I've had this too.  In my ribs, my collarbone, my wrists, my femur, all at some point or another.  Like you, I thought I had cancer.  I've been gluten-free about 6 months and most of that pain has gone away.  Still have some crop up here and there but overall is much resolved.  I take 2,000 IU's of Vitamin D every morning and most practitioners I have spoke with have been comfortable with it.  The Vitamin D acts as a bridge that allows calcium to cross and attach to bone in order to increase your bone density.  My Vitamin D was 30.  


2. Weight gain--I gained weight and then lost a bunch of weight before diagnosis.  I've been thin all my life, gained 10-15 pounds at one point, and then shedded lbs all the way down to 137lbs.  I started eating 3,000 gluten-free calories per day to get it back up and I'm sitting around 162 right now.  From my learnings, some people have trouble gaining weight for obvious reasons and then some people have issues losing or keeping it off.  If you are trying to lose it.  Lessen your caffeine intake, increase your water intake, reduce your gluten-free carb intake, increase your protein intake--ALL IN MODERATION.  Don't get all fired up and take such a diet to extremes and don't expect instant results!  If you are still working out, be careful not to carb starve yourself.  WATER, WATER, WATER.  The protein will make you feel fuller, the water will help your body get rid of wastes and toxins, the carbs are what your body tries to pull from first for energy and if there isn't much of it there to be had it will draw from fat reserves and muscle thereby reducing your weight.  MODERATION.  Carbs can be good, your brain needs them and so do you to get though a work out but track them and get your daily value.


3. Restless Sleep--Please forgive me for saying this...  Reduce your caffeine intake.  It sounds crazy trick your body.  If you drink coffee switch to a half-caff blend.  So in the morning you still feel like you are getting your coffee but the caffeine will be half.  The first couple days you'll feel the difference but after that, you will adjust.  Don't do your workouts late in the evening and if you lay around eating before bed it will make you sleep light anyhow.  This one will take time to make better but it will.  You're stressed about all these new sensations, aches, foods, norms, and it will occassionally keep you up at night.  Come to peace with your new lifestyle, don't be scared of some of the new aches, many of them will go away on their own when you least expect it.  Mine did.


4.  Extreme fatigue--Read number 3.  It certainly will not solve it but will get you headed on a better trajectory.  I went through this as well.  My issue was too much stress, too much caffeine during the day, and some anxiety/depression.  It's natural.  I made it through it.  I do not recommend over the counter sleep aids.  I did take a little melatonin at a low dose for no longer than probably a week when my sleeplessness was it its work.  Its over the counter but I made my doctor approve it and I recommend you do the same.


As for alcohol, caffeine, and not getting enough food/water...  These can all affect your bone density adversely.  Limit the caffeine.  As for the alcohol, your liver is probably already trying to repair itself and your body.  When you consume alcohol it has to work overtime on breaking down that alcohol which leaves it less time to heal itself, your body, and you.  Water helps it do its job.  Water will help reduce inflammation by flushing out toxins in your blood that cause inflammation.  


You're going to have some trial and error.  Find what works for you.  Don't walk around all day freaked out about your health like I did.  Eat gluten free, enjoy your day, enjoy your friends, thank God that you figured this thing out, and you'll do great!


PS--these are all things that worked for me.  To be safe you should run it all by your dietician or doctor to make sure it matches up with your needs.

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#854303 Why Has My Gliadin Igg Raised After 7 Months Gluten-Free?

Posted by on 16 February 2013 - 06:02 PM

I have been on the diet since November of last year. My gliadin IGG has gone up a little since my gluten-free diet. I'm not real worried because 1.) I have caught a couple weak spots where I was being glutened some unintentionally and 2.) it seems like I have read about others who have had the numbers continue to go up or stay the same for the first year before they start to drop. I'm assuming its one of these categories that I fall into. You're not alone!
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