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sunburst

Member Since 19 Dec 2012
Offline Last Active Jan 27 2014 03:54 PM
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Posts I've Made

In Topic: 18 Month Old Failure To Thrive

23 December 2013 - 02:58 PM

My 18 month old had similar symptoms; beige and VERY acidic diarrhea. Sudden onset such that we thought it was a stomach virus, but it just never went away. Husband is celiac so we eliminated gluten and she started having normal stools again. We also did the blood test (altho not the complete panel) and it came back negative. With family history and response to diet, we went gluten-free and never looked back. There are good reasons to do the endo, though. Just wasn't for us. Maybe we'll let her decide to do that when she's older. If she can tolerate eating a gluten diet for that long, that is.


In Topic: 16 Month Old With Probable Celiac Disease

23 December 2013 - 02:27 PM

Keep us update after the scope. This was our experience, too. Immediate rash and then bleeding blisters just after diarrhea. It was terrible. We didn't get the gene test for our 18 month old and her blood panel also came back negative. My husband is celiac, and she got better on a gluten-free diet, so we didn't choose to do the endo although I understand there are very good reasons for doing so. 

 

Yes, finding all the hidden sources of gluten can be very tricky. Does she stay at home with you during the day or does she go to daycare? 


In Topic: Onset Of Celiac In Baby

05 January 2013 - 11:25 AM

Well, results of the panel were negative, but it looks like they only ran three tests? ttg antibodies (less than 1) iga serum (47) and gliadin (2). I guess even if it's celiac it's not surprising since she was only symptomatic for two months and she was off wheat for the week prior to the test. Have an appt with the pediatrician on Monday.

In Topic: Question About Gluten Sensitivity

03 January 2013 - 01:10 PM

We experienced the exact same thing with our 18 month old; loose stools for two months. We could hear her mess a diaper and even if we got her out of it and cleaned off in 20 seconds, her bottom would already be red, like the stools were caustic. We just did the blood draw for the celiac panel over the holiday and are waiting on the results, but going gluten-free seems to have improved her symptoms.

My husband is celiac and a gluten-free diet doesn't need to be expensive, but it can take a little more effort. Just means you eat more whole foods instead of prepared stuff; I eat better now that I'm with him! More fruits and veggies! Because you're right- gluten-free ready-made food is super expensive and that's why we hardly buy any except for some breads and snacks.

In Topic: Onset Of Celiac In Baby

02 January 2013 - 04:37 PM

Had the test over the Christmas holiday and it was 30 seconds of crying and yelling (her, not me) :) but only 30 seconds and she promptly forgot about it. Plebotomist was fantastic. Am thinking the ice cream dinner that followed might have been more for parents than her....

Don't have test results yet, but since eating gluten-free, her rash is gone, stools normalized and her mood seems a bit better. Just wanted to update and thank folks for the input. Even if test is inconclusive, we'll continue with the gluten-free diet and I'm sure as with most little kids, she will eventually get an inadvertent gluten-challenge at some point and we'll see how she reacts.