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shellybean

Member Since 19 Dec 2012
Offline Last Active Dec 27 2012 04:30 PM
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#844192 Post Diagnosis Diet Confusion From Md

Posted by shellybean on 19 December 2012 - 08:06 PM

Hello everyone-

I have recently been diagnosed with Celiac, and am experiencing some confusion with the instructions my doctor gave me regarding my diet.

I have yet to get my biopsy, as I am low income and have to wait for the county to approve me for this procedure, but my blood test came back positive, and I have been fairly ill for the last five years.

After diagnosis, I asked my doctor to go over the gluten free lifestyle and the best ways to avoid cross contamination, as well as keeping a gluten free kitchen (my partner still eats gluten).

According to my doctor, she said there is no need for me to worry about cross contamination, or eating wherever I like. She said that it is stupid to have "celiac take over my whole life," and that as long as I am not intentionally ingesting gluten that I should heal, since my nutrients "aren't that bad." This is contrary to everything that I have read, or heard about celiac disease up to this point, and I am not apt to believe that I was given the best advice.

If someone could clear up the confusion for me that would be great. I am being really diligent about not eating gluten because I am tired of being sick. And if cross contamination is going to continue to cause me to have bouts of horrible digestive issues like I've been having, I am not understanding the advice my doc gave me.

Thank you so much!
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