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Member Since 21 Dec 2012
Offline Last Active Apr 09 2013 05:22 AM

Posts I've Made

In Topic: What Tests Should Be Done?

05 April 2013 - 10:00 AM

My kids tested negative too but two of them have problems with gluten so I removed it from their diet. My thinking is that it might be early in the disese for them so that they don't have intestinal damage that is causing a measureable autoimmune response, or they have non-celiac gluten intolerance - either way eating gluten-free works for them.


If the gluten-free diet is working for your kids, you might want to continue it for them. NCGI can cause real health problems (just no intestinal damage) if not treated so I thought it's probably better safe than sorry.


I've had thyroid problems in the past so my advice would be that when you see the doctor to have his thyroid checked, make sure you get copies of all blood tests. Doctors have a tendency to call thyroid labs normal if within range in spite of any symptoms the patient has... they did that to me and are doing it to my son. 


Anyway, don't let the doctors just request a TSH (which is a pituitary test really) but request a full thyroid work-up:

  • TSH (should be near a 1)
  • free T4 and free T3 (should be in the 50-75% range of your lab's normal reference range)
  • TPO Ab (should be very low, near a zero)

Sometimes doctors will simply request T4 or T3 which often results in a Total T4 or Total T3 test being done, these tests are not as helpful or give a really good idea of what is going on in the blood. The FT3 and FT4 show what is in the blood and are more accurate.


Sorry about the aside, I just get frustrated with doctors when it comes to the thyroid.  Best wishes.

I'm actually planning on getting his thyroid checked also. His TSH was checked recently because he was diagnosed with ADHD. It was 0.851 with the range being 0.3-6.0 as normal. I have Hashimoto's so I plan to get his antibodies checked. I'm wondering if he might be hyperthyroid since he is very underweight, cannot sleep, and very emotional (I read on that theses are common symptoms, as well as ADHD-type symptoms). I'm just trying to rule everything out before we give him meds for ADHD.


Thanks for the responses. I need to make a list to give his ped of the labs I want done. (Good thing I used to work there, so I can pretty much tell them what I want lol ).

In Topic: Kids' Test Results

22 December 2012 - 08:42 PM

1-19 is normal for someone (if i've got the scale right), 20-30 is considered a low positive, and anything above 31 a high positive.

It is normal for a body to produce a low amount of antibodies to my understanding.

Ok, I'm glad to know it's normal to produce some antibodies. Thanks :-)

In Topic: No Symptoms

22 December 2012 - 07:20 PM

Thanks for everyone's input. I will look around the site more, especially the links some of you have provided. I do need to take this more seriously and buckle down with the diet. I am greatful I found this forum :-)

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