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ktienken

Member Since 25 Dec 2012
Offline Last Active Jan 16 2013 05:26 PM
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Posts I've Made

In Topic: Help- Eczema After Stopping Gluten :(

10 January 2013 - 02:32 PM

Are you sure it is eczema and not dermatitis herpetiformis (DH)? DH is the skin form of celiac disease, It is normally intensely itchy and stinging, and tends to scar. It often is characterized by blisters or pustule like heads. DH can linger in the skin (and even appear) after the antibodies have departed from the blood stream per se. It takes a long time to completely recover from it, and it can be aggravated by iodine.

There is a whole section on the forum devoted to DH, including a thread entitled DH Photo Bank where you can compare your rash to that of others and see if it is similar.


Thanks so much for you reply! My doctor told me it was Eczema...but I'll still check out those forums for sure. It doesn't sting, itch, or have blisters. Basically, my face is just very dry and it gets red and forms tiny little bumps in between my eyebrows, the sides and beneath my nose and my chin. So, do you think it started as a reaction to all the gluten still coming out of my system?

In Topic: Mysterious Glutenings

09 January 2013 - 07:18 PM

Good idea about cleaning the cars. They are pretty clean but you never know. As far as soy goes, I have a hard enough time with gluten that honestly I think giving up more foods would be too much for me right now. Maybe in the future I will look into that. I have a dr appt. in a few weeks, i'll run it by him too. Thanks


I know what you're saying about the soy...BUT there is an article on Celiac.com that talks about how if a product is not "certified gluten-free" and it has soy in it, then it's not safe. This is not because of the soy itself, but because the soy is contaminated with gluten...because it's grown in the same fields as most grains and wheat, transported on the same tractors, processed in the same facilities, etc. The article says that a study tested and found up to almost 3,000 parts per million of gluten in products that were supposedly/labeled as "gluten-free" (20 ppm or less is considered gluten free). So, apparently we can only trust products that contain soy if they are "certified gluten-free", which promises that the product was batch tested or that the soy was grown in a safe place, etc.
Just a thought....I've been so overwhelmed by this too :/. Ugh... just found out in October and I developed Eczema AFTER stopping the gluten and soy. I've never had it before, and it won't go away! Why?!!

In Topic: Hair Salon...gah!

09 January 2013 - 07:04 PM

Sounds to me like you definitely need to avoid the gluten. One thing I read was that soy is a BIG time contaminator. Are you eating soy still? In a study that tested supposedly "gluten-free" products (but did contain soy) they found that some of the products had up to almost 3,000 ppm of gluten! (when less than 20ppm is supposedly considered gluten-free!). They determined that soy is typically grown in the same fields as wheat and other grains, transported on the same tractors, processed in the same facility, etc. etc., so the contamination can be awful!
You may already know this...just thought I'd mention it ;)

In Topic: Ummmm...is This Normal For Starting Out Gluten Free?

27 December 2012 - 04:38 PM

totally going through the same thing! I was diagnosed in early November and my bloating has just settled down. two thing that I would say (in case you don't already know): avoid soy at all costs . it is one of the biggest contaminates . I read a few studies where they tested products that were supposedly gluten free. they found that the products contained almost 3000 parts per million!!! 20 ppm is typically considered gluten free. If the product has been certified gluten free, and contains soy, then it is safe . I thought I was Gluten-Free for awhile, and then found out about the soy.

The second thing I would.'re commend is a cleanse/detox program. I really enjoyed the Clean Program (thecleanprogram.com). this will.be a good way to reintroduce things in your diet and find out what else your' 're sensitive to.
I've developed Eczema since I've stopped the gluten etc. :(. I don't know what to do, or if it will go away
:(

In Topic: Insane Detox?

26 December 2012 - 09:54 PM

Wow... I'm sooo sorry to hear that!!! You may have already done this, but have you done a serious change in your diet? I mean, like more than just stopping the gluten (AND soy... It's THE BIGGEST contaminator! Seriously.)...? I just finished the Clean Program. Seriously- it's amazing. Go to thecleanprogram.com, and read about it all. I did not buy any of the products they sell. You can do it all w your own products (which I can tell you about). The program has you eat specific foods, and avoid all of the allergen producing foods. It allows your body/system to reset, and then detox. Like some of the others have said, it's a way to find out what other things you may be reacting too. Again- you may already know all of this, or have tried an elimination diet, etc. Just thought I'd mention this one, along w the soy issue. Also- are you taking an antihistamine of any sort? I had full body hives for the past year (prior to finding out I had Celiac). A specialist I saw told me it was perfectly safe to load up on antihistamines to "retrain my body to stop producing histamine". So, I took Allegra 180 3-4 times a day. It really helped them to stop. Have you seen an allergy/asthma specialize? He/she might be able to tell you more. I will want to help you! I called myself Quasimodo because I was so deformed that I couldn't leave the house either :/.

I wanted to know- what is "tonne", that you said you ate for 2 months?




I went through a lot of that too, including the acne. I ate a tonne for about 2 months, and I lost 10 lbs doing it, and then my appetite dropped way down. I'm now not nearly as hungry as i was before going gluten-free.

It really is great to lose the migraines isn't it! Mine weren't as bad as yours but I had days where turning your eyes hurt, and when it became hard to drive or read because my vision was jumping around so much. I had no idea my headaches were linked to gluten so losing them was a very pleasant surprise. :)

Hang in there. I'm sure it will continue to improve for you too.

I really hope your eczema goes away too.. I used to have that CONSTANTLY (and in weird places, sides of my arms, jaw line, stomach..??!) I just started researching Dermititis Herpetiformis, and I think it's possibly what I'm dealing with.. right now some of the spots look a bit too cystic/nodular so I think a lot of it is still acne.. but who knows! maybe it's an awful combination of both at this point.

It's bad enough today (face, neck, chest, back, arms) to keep me in the house.. since my mother even said .. WOAH DO YOU HAVE MEASLES OR SOMETHING?!?!

*sigh* keeping fingers crossed that this isn't some kind of new normal. Good luck with your eczema. I found the really thick 'Eucerin Original Creme' helped keep mine in some kind of manageable state.