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Member Since 28 Dec 2012
Offline Last Active Jan 24 2013 04:54 PM

Posts I've Made

In Topic: Dapsone

30 December 2012 - 11:47 AM

Yeah I feel like I am one of the lucky ones, low dose too. Maybe you need to up ur dosage? I would figure you'd have more relief by now! I am very new to all this but maybe the clobetasol propionate and Elidel I've been cramming into my skin for the last 15 years kept me from having the disease as deeply manifested in my dermis

In Topic: Dapsone

30 December 2012 - 10:32 AM

so do you think if I am ascribing to a GFD I can taper off the Dapsone now and it would potentially not come back? That would be very cool.... I imagine prolly not though -_-

In Topic: Dapsone

30 December 2012 - 07:20 AM

I was told that I could come off the Dapsone after 6 months to a year of strict gluten-free diet, does that sound right? Is it really going to take that long for the GFD to kick in?

In Topic: Help For The Itching, Stinging, Burning, Pain Of Dh

30 December 2012 - 06:23 AM

I never had any luck with Triamcinalone (Kenalog) neither the cream or the shot :-/ I didn't get improvement with anything less potent then Floucininide, best result were with Clobetasol Propionate. I found this listing a few years ago and it's really helped me visualize the different strengths of topical corticosteriods. So every time I changed doctors I didn't end up with another low potency cream/ointment under a name I didn't recognize.


But I must admit I agree popping the blisters is the only relief from the pressure and pain of the blisters. Mine always seemed to fill back up at least once and I'd end up scratching off the scab/crust again. But once they turn into an itchy lesion then the Sarna was a great relief...

Nothing like self destruction to discover a good product. It's like "let me cut myself so I can by these great bandaids" :blink: a little different I know, but I still feel like the whole thing is very self-perpetuated.

In Topic: Dh Rash Bleeding Now

30 December 2012 - 06:04 AM

I use Sarna (sensitive) anti-itch lotion, it works better for me than any OTC product. It was less expensive at Wal-greens.

I love Sarna! Its the best OTC product I have ever used for the itch!!! It literally saved my sanity during pregnancy when I had to stop all the topical corticosteriods, topical immunomodulators and sedative antihistamines (before I found it was DH and was being treat for severe eczema). I bought it at Walmart. Online too sometimes (free delivery) then I didn't even have to face the pubic :ph34r:

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