I was training for an ultramarathon when I got diagnosed. I lost about 8 Lbs (I think all muscle) and am not just slightly underweight (18.5 BMI). My personal decision is to wait until 2 months gluten-free and then to maintain a healthy weight for at least two weeks before I start training again. I'm just ending the 2-month period, so it's all about gaining a few more pounds for me, which is crazy hard. Then I'll ramp up really slowly. On the sport board, some people recommend waiting even longer after going gluten-free before undertaking any serious exercise.
Anyway, this is just my opinion. Although I totally get the folks who don't wait -- so frustrating not to be running right now. I just ordered my favorite gluten-free running fuel, just to make myself feel better and have it ready in case I manage to gain the weight soon.
By the way, have you tried rice protein? I eat Zing bars, and that's what they have. I can't seem to do almost any foods, but the rice protein in Zing bars seems just fine.
Hey Chaff, I used to run 5k 3x per week before I started going down. Now I'm not too interested in running but lifting weights as I want to gain weight; however, like you, I noticed my muscles getting weaker and recovery taking longer before I stoped. When I picked up lifting I would actually loose weight despite eating like a horse. This was before going gluten-free a month ago, I feel myself improving.
I dont react to rice maybe I'll give it a try later, thanks.